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We made it!!! Just Ask drops in on the CTF NF Forum

imageIt wasn’t easy. It wasn’t pretty. But, it worked!

The Just Ask Tour traveled over 1,300 miles – from Houston, TX to Scottsdale, AZ – to attend the annual CTF NF Forum! Over mountains, through deserts, eating more fast food than we’ve ever eaten in our life, Reggie and I made it and lived to talk about it.

It’s been non-stop meetings and presentations packed with news on the latest clinical trials for Neurofibromatosis patients, the latest research and the latest facts about this disorder that affects 1 in 3,000 people!

I’ll write more after the conference is over but this is what the CTF website had to say:

April 17-19, 2015: Scottsdale, AZ
The Children’s Tumor Foundation’s NF Forum is a national patient and family gathering hosted annually in different cities across the United States.

The NF Forum allows those living with NF, and their families, to connect, support, and learn from each other while attending seminars on relevant topics pertaining to neurofibromatosis.

The 2015 NF Forum features: NF clinical and research updates, sessions on the personal and social challenges of living with NF, interactive Q & A sessions with NF specialists, fun activities, meals, social time with friends and family, and much more!

The Children’s Tumor Foundation, mindful of the high cost of transportation and family expenses, has underwritten a significant portion of the registration in order to keep the registration costs as low as possible.




3 thoughts on “We made it!!! Just Ask drops in on the CTF NF Forum

  1. So glad you guys made it to the NF Form! Reggie is an inspiration to all. Glad that you Lou help make it possible. Have glanced at your foundation and plan to do more when we get home. What a great name and idea. It can be difficult for people to know how to respond to some who appears different from them. Because of that we the public remain ignorant of diseases, problems, and how one can help but most of all we are deprived of getting to know another human being who can enrich our lives.

    Hope to see you more in the future and help in your mission.

  2. That’s fantastic. You are amazing and inspiring. Hope to see you in the UK soon

  3. Hello, was wondering about more details of the CTF trip, and mostly why was Lou licking/kissing the pavement?

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