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NF Fact of the Day for May 2nd

Reggie's first baseball game

 

 

 

 

 

 

Neurofibromatosis is a group of three genetically distinct disorders that cause tumors to grow in the nervous system.  Tumors begin in the supporting cells that make up the nerve and the myelin sheath (the thin membrane that envelops and protects the nerves), rather than the cells that actually transmit information.  The type of tumor that develops depends on the type of supporting cells involved.

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Just Ask Launches World Tour at 2015 Houston Art Car Parade, April 11!

Come to the Houston Art Car Parade on Saturday, April 11, as Reggie W. Bibbs and I officially launch the Just Ask World Tour and Bus to over 300,000+ parade goers! It’s the largest Art Car Parade in the world and we are honored to be chosen as one of its participants!

Houston Art Car Paradeimage

Immediately after the parade, we will be driving to Scottsdale, Arizona to attend the Children’s Tumor Foundation Neurofibromatosis Forum April 17 – 19! We look forward to seeing all of our old friends from CTF as well making a bunch of new ones!!!

Also, along the way, we will be spreading love and awareness of neurofibromatosis on behalf of the Just Ask Foundation and everyone challenged by NF throughout the world.

 

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May is Neurofibromatosis Awareness Month

ABOUT NEUROFIBROMATOSIS (NF):*

Neurofibromatosis, or NF, is a common, yet under- recognized genetic disorder that can cause tumors to grow on nerves throughout the body.

• NF is more prevalent than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined.

• NF occurs in one in every 3,000 people and affects millions worldwide.

• NF can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain.

• NF can arise in any family regardless of race or ethnic origin. Roughly half of all cases arise in families with no history of the disorder.

• NF has three distinct forms, NF1, NF2, and schwannomatosis.

• NF research is shedding new light on several forms of cancer, brain tumors, bone abnormalities and learning disabilities, ultimately benefiting the broader community in addition to those with NF.

• Progress toward ending NF is being made every day. Because of Children’s Tumor Foundation funding, there are over 40 on-going NF-specific clinical trials in existence, and 44 NF Clinics nationwide.

* Above information was provided by the Children’s Tumor Foundation (CTF.org)

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