ABOUT NEUROFIBROMATOSIS (NF):*
• Neurofibromatosis, or NF, is a common, yet under- recognized genetic disorder that can cause tumors to grow on nerves throughout the body.
• NF is more prevalent than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined.
• NF occurs in one in every 3,000 people and affects millions worldwide.
• NF can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain.
• NF can arise in any family regardless of race or ethnic origin. Roughly half of all cases arise in families with no history of the disorder.
• NF has three distinct forms, NF1, NF2, and schwannomatosis.
• NF research is shedding new light on several forms of cancer, brain tumors, bone abnormalities and learning disabilities, ultimately benefiting the broader community in addition to those with NF.
• Progress toward ending NF is being made every day. Because of Children’s Tumor Foundation funding, there are over 40 on-going NF-specific clinical trials in existence, and 44 NF Clinics nationwide.
* Above information was provided by the Children’s Tumor Foundation (CTF.org)