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Neurofibromatosis, Inc.

NF Inc
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What is NF?

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States (one in every 3,000 to 4,000 births).

NF has two genetically distinct forms: NF-1 and NF-2. The effects of NF are unpredictable and have varying manifestations and degrees of severity. There is no known cure for either form of NF, although the genes for both NF-1 and NF-2 have been identified.

NF is an autosomal dominant genetic condition; it is not contagious. Approximately 50% of those affected with neurofibromatosis have a prior family history of NF. The other 50% of cases are the result of spontaneous genetic mutation. If an individual does not have NF, s/he can not pass it on to his/her children.

Joseph Merrick, whose condition was depicted in the play and film, The Elephant Man, is often incorrectly thought to have had neurofibromatosis. Merrick’s condition has been identified as Proteus Syndrome, a disorder similar to NF, but unrelated. To learn more about Proteus Syndrome, please visit the Proteus Syndrome Foundation’s website.


  Neurofibromatosis, Inc.
P.O.Box 18246
Minneapolis, MN 55418
Phone: (301) 918-4600
1- 800-942-6825
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THE WINNER IS……

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Last night was the 45th Houston Advertising Federation ADDY Awards. It was a terrific! night. I’s a big deal for me. I thank all of my friends that helped make this happen. You know who you are. I wasn’t the only one there. If you were at the event, please let me hear from you.

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Houston Livestock Show and Rodeo

A great time for me. That’s right. The Houston Livestock Show and Rodeo is celebrating its 75 year Anniversary. Alright Houston! The events starts February 27th. If you are going to see George Strait (to name just one of the good performers who will entertain us), start thinking about getting your tickets early. I hope to be one of the lucky souls that will attend. Any of the country performers will work for me. Who’s going to the Rodeo? Who will you see? I know there will be good stories to share.

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ADDYS THIS WEEKEND

The ADDY Awards program will be this weekend. I will be there, with crossed fingers. I hope to be one of the recipients of these great awards. Although I have been lucky enough to attend a few years ago, I still feel a little nervous about the big day. If I don’t win this year, it’s OK. I know I will enjoy myself. I look forward to meeting new people, who I know will become new friends to me. Wish me luck, but don’t say “break a leg.” I only have one good leg. k. Any one have ideas on how to get over the nervousness?

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VALENTINE’S DAY

FYI. I have been reading and this is what I found on Valentine’s Day. There are many opinons as to who was the original Valentine, with the most popular theory that it was a clergyman who was executed for secretly marrying couples in ancient Rome. In any event, in 496 A.D. Pope Gelawius set aside February 14 to honor St. Valentine became a patron saint lovers. In the 1840s, Esther Howland, a native of Massachuestss. is given credit for sending the first Valentine cards. The spitrit of love. continues as valentines are sent with sentimental verses and children exchange valentine cards at school. I saw a lot of people buying Roses. Are you one of them? What do you think about this day, what would make Valentine’s Day special for you?