Posted on

The Just Ask World Tour: Stop #1

The Bus Stops Here!

Texas NF Symposium 2014 at MD Anderson Cancer Center in Houston

Just Ask founders Reggie Bibbs and Lou Congelio drove the Just Ask Mobile to MD Anderson Cancer Center last Saturday, August 16th, to attend the annual NF Symposium presented by the Texas NF Foundation of Dallas, Texas.

Cindy Hahn, Executive Director of the Texas NF Foundation, and Emily Deutscher, Development & Events Director at the Foundation, did a great job in putting together an incredible event that allowed everyone to reconnect with NF friends and families from years past while also making many new friends!

A “Who’s Who” of NF doctors, surgeons, researchers, and clinicians were on hand to update us on the latest news and treatments. Among the doctors and topics discussed were:

Overview of NF and Genetics – John M. Slopis, M.D., MD Anderson Cancer Center

Benign and MPNST’s Surgical Resection – Ian E. McCutcheon, M.D., MD Anderson Cancer Center

Neuropsychology, Education and NF – M. Kris Frost, M.Ed, and John M. Slopis, M.D., MD Anderson Cancer Center

Clinical Research and New Protocols – Laura J. Klesse, M.D., Dallas Children’s Medical Center

Scolosis/Psuedarthrosis – Charles E. Johnston, M.D., Texas Scottish Rite Hospital, Dallas

Brain Tumor – Wafik Zaky, M.D., MD Anderson Cancer Center

Thank you Cindy, Emily, Dr. Slopis, and the Texas NF Foundation for all you do for the NF community. I don’t want to think what it would be like without you! For more information on the Texas Neurofibromatosis Foundation, visit www.texasnf.org or follow them on Facebook.

sarahaustinandreggie
Reggie Bibbs and Sarah Hines Austin
Hannahandreggie
Reggie Bibbs and Hannah
cindyandemily
Cindy Hahn and Emily Deutscher of Texas NDF Foundation

Reggie Bibbs and Dr. John Slopis of MD Anderson Cancer Center
Reggie Bibbs and Dr. John Slopis

Posted on

Meeting Kevin Nealon in Houston

Some friendsand and I went to see Kevin Nealon at the Improv last night. Click on the link, valt then photo. Check out the photos on his website, as well as the photos of my facebook, and flickr page.  I met Kevin a fews years ago in California, when visting my friend Scott. That is how I met Kevin. I’ve been friends with Kevin 3 years after that day. Kevin contact me to say he would be in Houston, and he would like for me to come see him. We did, and he really made me happy, as he did the same for my friends.

This is what Kevin did for me.  He wore my just ask shirt on stage. He gave me free tickets. He talk to me after the show, Was not in a rush to leave. He posed for photos with me. He collect lots of doodles for National Doodle Day.

Joan Rivers, Jane Leeves, Wendie Malick, Jon Lovitz, Valerie Bertinelli, Garry Shandling, Roseanne Barr, and of course Kevin Nealon.   And Kevin gave me this medallion. It was given to him by Brad Paisley. It reads Expect Great Things.  Kevin really made me happy, and Im thinkful for what he is doing for all of us that are affect by NF.