I enjoy country music. As you may have seen from my Website, I have been lucky enough to meet one country music peformer, Kenny Rogers. I treasure the pictures that I have of Kenny Rogers, Gary Morris, and me.
Who would I like to meet? Well, to name a few: Dolly Parton, the Oak Ridge Boys, and Clay Walker.
Today, I would hope to hear from all of you. If you are a country music listener, share with me who you have met and what your experence was when you met him or her.
Make it a tremendous day.
Today my family went to a Memorial Service for my brother Ronald Bibbs who died last September. It was held at Houston’s Odyessy Healthcare, the organization that took care of Ronnie when he was very sick. They did a terrific job in comforting us in that low point in our lives. Today we met a lot of people who lost someone they loved. When I saw all the people, I didn’t feel so alone. I knew then that others are hurting also. I though about a lovely song. CRY OUT TO JESUS. (THIRD DAY). The words in the song gives me comfort. I’m learning it helps to talk to your friends you have in your life now. And start enjoying every moment you have with your friends. One other thing that is helping me is expressing myself in writing. If anyone have tips that can improve writing skills or if you like to write. I would love to hear from you.
Today I had a Terrific Day! I went to Discount Tire. There was a nail in my tire, and I needed to buy a new one or have the old one patched. This is something I must work on: not to expect everyone to have a negative reaction to me. Usually I don’t feel that way. There are times I do not. When someone treats me nicely, it gives me a wonderful feeling. It makes me want to write a letter to the company and tell them about myself, and what great employees are working for the company. I must remember they are doing their job. They are treating me the way I want to be treated (a good customer). Please leave me your thought on this.
Lou Congelio just called me. He is president of STANANDLOU Advertising, the agency that helped me develop this Web site. This site has been nominated for an Addy award and the awards ceremony is on February 17. Lou and I are invited to a dinner and an awards presentation.
I am really excited about the nomination. Winning would be a great honor, not just for me, but for everyone else who has NF. People with NF and other disfiguring conditions find it difficult to do everyday tasks, and this site increases public understanding of the hurdles that we have to overcome.
If we win, I will accept the award on behalf of Ronnie, my brother who had NF and cancer. He died in September of 2006, and I miss him a lot. One of the benefits of this site is to tell everyone that people with NF may be susceptible to developing cancer. NF itself is not life-threatening, but if you have it, you need to be in the care of a physician and alert him or her if anything changes about your condition.
Do you have NF? Do you know of someone who does? If yes, tell me your story. I will be thinking about you at the awards ceremony.
Wherever I go, I wear a shirt that says, “Just Ask.” Even though I am wearing the shirt, people still hesitate to talk to me—they do not want to be insensitive.
From the time we are kids, we are told not to ask questions. Children stare at me and say “What happened?” and their mothers hush them. They will grow into adults like many I know who are afraid to talk about my condition—afraid they might hurt my feelings. I don’t mind questions. I am an outgoing guy and I really want you to know about me.
Do you want me to know about you? Write to me. I’d love to hear from you.