Here is a link to past your draft letter
I received this support letter template via email from our neurofibromatosis lobbyist in Washington, D.C. She asks that we distribute this letter to all our friends of NF so they can sent it to their congressperson in D.C. This letter is the result of our meetings earlier this year when I went to talk with the senators and Army people to continue funding for NF research. This is very important and I know everyone with NF will want to help. Thank you.
Okay, this will remove the last barrier to 100 percent compliance with Sir Reggie’s command. Here is a website with names and addresses of all 100 Senators. http://www.senate.gov/general/contact_information/senators_cfm.cfm – Bart Moore
The Honorable (Senator’s Name)
Washington, DC 20510
Dear Senator (Name):
As someone closely touched by Neurofibromatosis (NF), I write to request your support for the Army’s Neurofibromatosis Research Program in the Fiscal 2010 Department of Defense Appropriations bill. The House of Representatives included $25 million for NF research as part of the Congressionally Directed Medical Research Program (CDMRP) for FY2010, and I write to encourage the Senate to also include $25 million for this program when the FY2010 Defense Appropriations bill is considered. Significant advances in NF research have been made, due in large part to the Army’s program, and leading researchers are now on the threshold of a treatment and a cure for this terrible disease.
NF involves the uncontrolled growth of tumors along the nervous system, which can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and death. NF is the most common neurological disorder caused by a single gene and it affects approximately 100,000 Americans. However, because of NF’s close connection to many common diseases and disorders, such as cancer, learning disabilities, heart disease, memory loss, and brain tumors, research on NF stands to benefit 175 million Americans in this generation alone.
NF research can also benefit the military since the disease is connected to nervous system impairment and war-related illnesses. Because NF manifests itself in the nervous system, the Army-supported research on NF addresses peripheral nerve regeneration after injury from such things as missile wounds and chemical toxins. Findings generated by research on NF can make important progress in our understanding of wound healing, as well as in investigating genetic mechanisms which involve not only the nervous system, but also other cancers.
The modest investment in NF research over the past thirteen years has already resulted in major breakthroughs. However, I believe that we must continue to invest in research if we are to continue to advance towards treatments and cures for NF and the numerous diseases associated with it. I ask that you include $25 million for the Army’s NF research program in the Fiscal Year 2010 Department of Defense Appropriations bill.
Thank you for your attention to this request.