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MORE ON AUSTRALIA

bluemountain.jpgHere is a picture I found that shows a reason why anyone would enjoy a vacation in Australia. It’s called Blue Mountain. Someone else wrote to me about wonderful places to visit when in Australia. If you have had the opportunity to visit, please post your experience.

Someone also mention Melbourne, a beautiful city in the suburbs. I have also seen pictures that are truly beautiful. If you see pictures, you would be surprised. Its a lot of felmiler places form well known movies. Type it in and you will see just how beautiful places Australia has to see.

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FACE TRANSPLANT

face-transplant.jpgThis article was forward to me by one of my contacts that also have nf. After the read the article post your thoughts. Would this solve the problem? Would tumors grow back? What would you do ?

French Drs. Perform New Face Transplant

PARIS, Jan. 23, 2007


lantier.jpg(AP) French doctors said Tuesday that they had performed a partial face transplant on a man whose face was disfigured by a genetic disorder, giving him a new nose, mouth and chin and replacing part of his cheeks.The 15-hour operation Monday was the world’s third partial face transplant.”The patient is doing well from a surgical point of view,” said Dr. Laurent Lantieri. Still, he added, “We will have to wait many months for the results.”The 29-year-old patient suffered from a genetic condition known as neurofibromatosis, which causes tumors to grow on nerve tissue throughout the body, the doctors said. The condition is similar to the disorder that affected Joseph Merrick, who was depicted as “The Elephant Man” in the theater and on screen.The patient had undergone about 30 or 40 surgeries over 10 years to try to improve the appearance of his face, Lantieri said. The tumors on his lips had grown so large that he could no longer eat properly or speak easily, Lantieri said.”It was the only solution,” he said.Doctors said one of the patient’s main sources of suffering was the fact that he could not get a job because of his appearance.

Despite the lifelong risks that a transplant surgery poses — episodes of rejection or even death — the patient “didn’t hesitate a single second,” Lantieri said, adding that the patient was “completely serene” going into the surgery.

The man remained sedated Tuesday, and still had not seen a picture of himself. The doctor did not release any identifying information about the patient or the donor.

Lantieri carried out the operation at Henri-Mondor hospital in the Paris suburb of Creteil.

In 2005, Frenchwoman Isabelle Dinoire received the world’s first partial face transplant after her dog mauled her. Since that surgery, a Chinese farmer also received a partial face transplant after he was disfigured in a bear attack.

The latest procedure is different because the patient was disfigured by a genetic condition, not an accident.

Lantieri, an adviser to the French medical ethics panel, had criticized the first partial face transplant, saying Dinoire’s surgeons should first have tried reconstructive surgery.

On the anniversary of Dinoire’s procedure in November, doctors said her operation was a success and that she is gaining more sensitivity and facial mobility.

Doctors in Britain and the United States are also working toward similar procedures.

In October, an ethics panel approved plans by surgeons at the Royal Free Hospital in London to carry out what could be the world’s first full-face transplant, though it said no patients had been selected yet. The Cleveland Clinic in Ohio is also working on plans for full-face transplants.

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Australia

blue.jpegAustralia is one place I have always wanted to visit. There are so many beautifully places there, it would be hard to pick just one.

If I had to choose, I would say Blue Mountains, from there it would be Sydney. See told you it hard to say just one. The pictures I saw are breath taking. I would like to know what you think? It would really be nice to hear from someone in Australia.

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SLEEP APNEA QUESTION

According to American Sleep Apnea Association the following is foundapnea2.jpg.
The Greek word “apnea” literally means “without breath.” There are three types of apnea:

1. obstructive 2. central,and 3. mixed. Of the three, obstructive is the most common.

Despite the difference in the root cause of each type, in all three, people with untreated sleep apnea stop breathing repeatedly during their sleep, sometimes hundreds of times during the night and often for a minute or longer.

ost.jpegObstructive sleep apnea (OSA) is caused by a blockage of the airway, usually when the soft tissue in the rear of the throat collapses and closes during sleep. In central sleep apnea, the airway is not blocked but the brain fails to signal the muscles to breathe.

Mixed apnea, as the name implies, is a combination of the two. With each apnea event, the brain briefly arouses people with sleep apnea in order for them to resume breathing, but consequently sleep is extremely fragmented and of poor quality.

snore.jpgSleep apnea is very common, as common as adult diabetes, and affects more than twelve million Americans, according to the National Institutes of Health. Risk factors include being male, overweight, and over the age of forty, but sleep apnea can strike anyone at any age, even children.

Yet still because of the lack of awareness by the public and healthcare professionals, the vast majority remain undiagnosed and therefore untreated, despite the fact that this serious disorder can have significant consequences.Untreated, sleep apnea can cause high blood pressure and other cardiovascular disease, memory problems, weight gain, impotency, and headaches.

Moreover, untreated sleep apnea may be responsible for job impairment and motor vehicle crashes. Fortunately, sleep apnea can be diagnosed and treated. Several treatment options exist, and research into additional options continues.

This a question, I would like to know, have there been any studies on nf patients that believe they may have sleep apnea? I ask this, because it’s a problem I have been dealing with. I wonder if Neurofibromatosis and sleep apnea be related to the other? Is there anyone else that with nf, believe they may have sleep apena?

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WHO HAS NEUROFIBROMATOSIS ?

gb.jpeghr.jpegThis is interesting to me. I saw a PSA for neurofibromatosis, with Harold Ramis. Harold Ramis is a comedian who was in Ghostbusters. I would like to know, doese he have nf ? does a family member have nf ? Or did he feel the need to help with making people aware of neurofibromatosis. It’s great that someone as famous as he, has join in that battle against nf. If you have not seen the psa, click HERE.