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May is Neurofibromatosis Awareness Month

ABOUT NEUROFIBROMATOSIS (NF):*

Neurofibromatosis, or NF, is a common, yet under- recognized genetic disorder that can cause tumors to grow on nerves throughout the body.

• NF is more prevalent than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined.

• NF occurs in one in every 3,000 people and affects millions worldwide.

• NF can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain.

• NF can arise in any family regardless of race or ethnic origin. Roughly half of all cases arise in families with no history of the disorder.

• NF has three distinct forms, NF1, NF2, and schwannomatosis.

• NF research is shedding new light on several forms of cancer, brain tumors, bone abnormalities and learning disabilities, ultimately benefiting the broader community in addition to those with NF.

• Progress toward ending NF is being made every day. Because of Children’s Tumor Foundation funding, there are over 40 on-going NF-specific clinical trials in existence, and 44 NF Clinics nationwide.

* Above information was provided by the Children’s Tumor Foundation (CTF.org)

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Behind the Scenes at T-Shirt Central, “Just Ask!” World Headquarters, Houston, TX!

Just Ask! T-Shirts

The shirts say you care. Order yours here!

If you’d like to order your very own, “official” JUST ASK! t-shirt, you’re at the right place. T-shirts are available in adult small, medium, large, X-large, 2X-large and 3X-large. The men’s shirt is available in yellow, and the ladies shirt is available in blue, pink. or plum, with a fitted waist and a v-neck. Cost is just $15 per shirt + $5.00 shipping / handling with all proceeds going toward increasing awareness of neurofibromatosis. Thanks for supporting Just Ask!

Order t-shirts here!

 

Order Just Ask t-shirt

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Reggie’s First Ever PSA for Neurofibromatosis, 1989!

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Gotta Love Deborah and OfficeMax

I went to OfficeMax for office supplies today.  As Lou and I shopped, Deborah asked if we needed help with anything. She helped with finding the ink for my printer.

When it was time to check out, Deborah, was there again with a big smile. I had a chance to mention Just Ask, but didn’t have any cards with me.  Deborah, was nice enough to allow us to take a photo of her.

Thank you Deborah, for your help, and for being so kind! Office Max should be very proud of you!

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