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Our new friend, Charlie Holmes, just asked about Neurofibromatosis.

Mr. Bibbs
This past week I was at md Anderson for a follow up to some surgery I had. While waiting for my truck I had the good fortune to be standing next you while you waited for your ride. I always enjoy meeting and talking to new people everywhere I go. We started talking and enjoyed our conversation. The talk turned to Canada and traveling and the weather. I asked you where you had previously worked thinking that maybe your job had taken you to different places.
You were so elequent in your conversation and I was happy to get your name and shake your hand. You had such a pleasant demeanor and outlook not appearing to be over burdened with the daily issues that you every day. I had hoped it would take longer to get my truck back.
I was telling my wife about you and thought about you on our trip back home to north Arkansas. Years back I had read an old book “very special people”. It got me to read a lot about different different folks with health issues that would/could bring a person to withdraw from daily life and virtually disappear especially with the ignorance of so many folks they come into contact with. Then you have some who don’t allow that to happen and use their issues and disabilities to lift others.
I get so wrapped up in day to day issues and get depressed at times thinking how difficult it is. Our eyes are opened at times by amazing folks with amazing life circumstances.
I got home and on a whim looked up your name and lo and behold I find the “just ask” website . Amazing.
It is obvious that you are one of those folks who does use what issues or disability you have as a lifting tool to others. It’s an amazing ability given to few and used by a chosen few. No wonder it showed in that short time I had the pleasure of talking to you. My question of where did you work is irrevelent. My question should have been how many years have you been employed at your organization and more years to come.
We have to come back to Houston for medical issues. Thought after retiring from Shell oil after 38 years I could get away for good. The old saying “growing old isn’t for sissies” ain’t no lie. Houston has the best medical facilities.
My wife and daughter have a small medical Id business, ( http://www.idmii.com) and she’s on all these congenital heart groups due to issues she has (daughter) and lives in Houston so we have to go back often. Some amazing folks and stories in those groups too especially with the kids.
Our next trip back I’ll have to buy a couple of the t-shirts.
Keep up your amazing work and was a pleasure meeting you.
Charlie Holmes
[email protected]

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Don’t ever give up!

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Adrian and Rachel join the Just Ask Crew at Lou’s house to celebrate new marketing initiative!

But it’s a secret for now…but not for long.

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A special message from a dear friend, Juanita Harriman

Juanita and John
Juanita and John Harriman

Hello Lou. I have been following Reggie and you shortly after the feature film with Maurice Simpson I might have spelled his name wrong. “My New Face”. When Maurice had his surgery, then there was a section on Reggie. My husband John Harriman. Is 65 yrs old. He has NF. So does our son and his two daughters, his son does not have NF. Our daughter and her 4 children do not have NF. I just wanted to tell you, I think what you have done with Reggie, with the music, traveling and the bus, all of you have brought a lot of awareness to NF. I wanted to thank all of you. Years ago, my son and my husband had tumors removed by the doctor in Omaha Nebraska, sent to Dr. Francis Collins, in Ann Arbor Michigan, at the University of Michigan, this study for the gene that causes NF. The local news station came to our house, and did a short story on our family. It was called “The New Hope Family”. My husband and son, g9t no money for this. No awards, just the one time little section on the channel 3 News in Omaha, Nebraska. Just being able to be in this study was an honor for my son and husband, to be part of this study. Oh I forgot to mention, my husband John Harriman has two nieces in Dallas, they have NF also. The one niece has had many surgeries for NF. I do not know about her daughter. Once again, thank you for doing all you do for NF Lou.

Thank you, Juanita!

 

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Just Ask Bus to roll in Houston Art Car Parade in Downtown Houston

We had so much fun last year driving in the Houston Art Car Parade that we have decided to participate again this year! Come on out and join us as we bring awareness of Neurofibromatosis to over 300,000 + attendees!!! Mark the date: Saturday, April 9, 2016 in Downtown Houston.

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