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A Letter from our Founder, Reggie Bibbs

Dear friends,

Reggie and his brother, Byron.
Reggie and his brother, Byron.

As some of you may know, I am a man of meager means. Part of this is because of my NF, but part of it is also due to the way I’ve chosen to lead my life.

I live simply. I don’t need much and I am not a complainer. I have a firm faith in God, Country and my fellow man. I don’t need a big house, a nice car or perfect health because I have spent a lifetime figuring out what is truly important: living comfortably within my means and enjoying the companionship of others.

But no matter how frugal I may be, sometimes even the simplest needs of the Just Ask! Foundation are beyond my ability to provide.

When people find this out, they often say “If I only knew you needed something, I might have been able to donate it to your cause!”

Like when I needed new shelves for my t-shirts, and my friend Lou Congelio helped me out by donating some really nice shelves he wasn’t using anymore. Sometimes it just works out that a particular company or individual happens to have exactly what I need.

Reggie and his mom.

So, if you happen to be one of those people or companies that is in a position where you are able to make a positive difference in someone else’s circumstances—or mine— I am asking you to please do so.

As you may know, a big part of Just Ask! Happens via the Internet. It has truly opened the world to me. And now we have an online store!

I’ve always felt that life simply “comes at you” whether you are ready or not… and it’s how we react to life’s challenges that I believe is a person’s measure. For all of you reading this that have helped others through volunteering or charitable donations, allow me to say “Thank You” on behalf of everyone that ever needed the help of their fellow human beings.

Now, go out and “Make it a Tremendous Day!”

Reggie Bibbs

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Just Ask Us about Houston’s 1st Ever Cupid’s Undies Run!

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The Winner!
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The Undies!
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The Start!

The Just Ask World Tour descended on Downtown Houston today to witness the first ever Cupid’s Undies Run in the Bayou City!

VIDEO OF THE START

Reggie and I had no idea what to expect but what we witnessed just blew us away!

Try to imagine 350 half-naked runners taking to the streets of Houston in celebration of their fundraising for the Children’s Tumor Foundation.

350 of the nicest, most kind-hearted people in the world who not only ran in their undies to raise awareness of and money for neurofibromatosis, the same disorder that Reggie has. Money raised during the Run will help fund clinical trials, discover better treatments and hopefully find a cure!

CHANNEL 13 PHOTOS

Reggie and I had the pleasure of hanging our with the organizers of Houston’s first race and, I got to tell you, we had a blast!

VIDEO OF THE AWARDS

I’ll write more later but, right now, I’m more interested in uploading the photos and videos to Reggie’s Flickr account. Watch for the links here!

PHOTOS

HOUSTON CHRONICLE PHOTOS

http://m.chron.com/entertainment/slideshow/Cupid-s-Undies-Run-Houston-2015-103274/photo-7526613.php

 

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“Pimple” – Our newest ad to promote awareness of neurofibromatosis

Our new ad for the Just Ask World Tour campaign.
Our new ad for the Just Ask World Tour campaign.

In preparation for our Just Ask World Tour promoting awareness of neurofibromatosis, we are preparing special ads that we will send to the newspapers of the cities we are about to visit to see if they would run them as a Public Service Announcement (meaning for FREE!) while we are in town or afterward as a reminder or before as a teaser.

We have a bunch of really cool headlines but this is, by far, my favorite!

If anyone would like copies of the ads to try to get your local newspapers to run them, I would be happy to supply the files. Like Reggie says, Just Ask!

 

For more medical type definition of neurofibromatosis, I like the Mayo Clinic description best:http://www.mayoclinic.org/diseases-conditions/neurofibromatosis/basics/definition/con-20027728

 

 

 

 

 

 

 

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Just Ask Foundation 2015 State of the Union Report

Santa Bibbs
Santa Bibbs

As 2014 draws to a close, it is not only appropriate but necessary to thank the thousands of friends and supporters that have made the Just Ask Foundation a leader in promoting awareness of neurofibromatosis.

We believe that the more people who know about neurofibromatosis and its many manifestations, the easier it will be for those challenged by NF to enjoy life more fully — no longer encumbered by the prejudices of those who don’t understand.

We intend to continue educating people and reminding them that it doesn’t matter what we look like on the outside, that we are all the same on the inside with the same thoughts, desires, feelings, wants and dreams.

From humble beginnings…

We, at the Just Ask Foundation, are very proud of what we have accomplished to date but, we realize, there is so much more to do.

This past year, we were the recipient of a 1991 GMC school bus that would allow our dreams of a Just Ask World Tour to begin. Many thanks to Tracy Boulware at Deer Lake Lodge & Spa in Montgomery, Texas for their most generous gift and kind thoughts!

Graphic designer, Kim White, of Open Road Creative and our friends at Bayou Graphix helped us incredibly with their expertise, advice and “special” pricing that enabled our bus to become a traveling billboard, helping us reach thousands of people every day just by the mere appearance of the bus at gas stations, restaurants,special events and just driving down the road!

To great things!!

We are very, very proud of the finished result!

in 2014, we started an online fundraising page at GoFundMe which has truly been a blessing. We have already received over $14,000 in donations of our $120,000 goal which has allowed us to make much needed repairs on our Just Ask bus and to visit various cities around Texas!

Hopefully, through continued donations and sponsorships, we’ll be able to travel more extensively throughout the United States and Canada spreading the word about NF.

I would be remiss not to mention the countless individuals behind the scenes that have helped us in so many different ways — spiritually, physically and financially that helped us get to where we are today.

Carolyn Farb, Reggie Bibbs, Greg Gorman

First, and foremost, much of what has happened in Reggie’s life would not have been possible without the kindness, thoughtfulness and generosity of Houston socialite Dr. Carolyn Farb!

Carolyn chaired the first major fundraiser for neurofibromatosis back in 1992 and asked Reggie Bibbs to be featured in the now famous fundraiser, “My Heart Belongs to Daddy” held on the ice rink at Houston’s famed Galleria.

Reggie and the Ladies

 

 

Later, Carolyn introduced Reggie to Los Angeles photographer, Greg Gorman, who to this day remains one of Reggie’s closest friends. Greg gave Reggie the money to buy his first car and on many occasions has flown Reggie out to his home in Hollywood where he invites many of his showbiz friends to meet Reggie and help promote awareness of his disorder.

Reggie and Beyonce. Reggie is the reason Jay-Z had to put a ring on it…

The names of these celebrities would fill a Who’s Who of Celebrities but I will try to name a few: Sharon Stone, Catherine Bach, Shari Belafonte, Quincy Jones, Sugar Ray Leonard, Ricki Lake, Beyonce, Chris Atkins, Rick Moors of The Bonedaddys, and many, many more!

Colin Hay, lead singer and song writer of the music group, “Men at Work”, has been a huge supporter of Reggie and Just Ask the past four years. Besides comp tickets at the door for the Just Ask team, Colin dedicated his hit song, “Waiting for My Real Life to Begin”, at his last performance in Houston. and granted Just Ask exclusive use of the song in perpetuity. Click above to view the song recorded at the Dosey Doe Concert venue in Houston, Texas.

Play ball!!

William Hughes and Matt Jones of the Just Ask Foundation edited their own version of the song using photos from Reggie’s extensive Flickr account. Click here to witness Reggie reaching out to people and raising awareness of NF wherever he goes.

Kevin Nealon

Extra special thanks go to Kevin Nealon, formerly of “Saturday Nite Live” for being an incredible friend to Reggie on and off the stage through VIP tickets, texts, emails, phone calls and linking to Reggie’s website on his own page. Kevin is, by far, one of the nicest people you will ever meet!

Other celebrities and individuals who have gone out of their way to support Reggie and Just Ask include Kenny Rogers, The Neville Brothers, Cirque du Soleil, former Texas Governor, George W Bush, Fort Worth Mayor Mike Moncrief, Dr. Vic Riccardi, Dr. Don Baxter, Dr. John Slopis and Bart Moore of M.D. Anderson Cancer Center, Houston Mayor Bill White, Dallas Cowboy Coach Tom Landry, Houston Roller Derby, Robin Leach, musician Charlie Sexton and many, many, many more!

Reggie and the Psych Ward Sirens form Houston Roller Derby

We are so appreciative of all the help and support we have received to get to where we are today but, quite honestly, we haven’t even begun to accomplish what we feel we must do to make a difference.

Once again, we ask for your generous help and support to allow the Just Ask Foundation to continue our mission to raise awareness of NF so that EVERY human being with NF has a chance to live their life with love, understanding and compassion.

Thank you for all you do!

As Reggie says at the ends of all of his emails, MAKE IT A TREMENDOUS DAY!

Lou talking to Reggie’s hand.

Lou Congelio
Reggie’s Friend
Executive Director, Just Ask Foundation


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Of course, the Just Ask foundation is always accepting donations from our personal community via Go Fund Me, which has already raised over $14,000.Please feel free to connect us via Facebook, Twitter, and thehttps://www.justaskfoundation.org for updates on the Just Ask World Tour!

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Meeting Kevin Nealon in Houston

Some friendsand and I went to see Kevin Nealon at the Improv last night. Click on the link, valt then photo. Check out the photos on his website, as well as the photos of my facebook, and flickr page.  I met Kevin a fews years ago in California, when visting my friend Scott. That is how I met Kevin. I’ve been friends with Kevin 3 years after that day. Kevin contact me to say he would be in Houston, and he would like for me to come see him. We did, and he really made me happy, as he did the same for my friends.

This is what Kevin did for me.  He wore my just ask shirt on stage. He gave me free tickets. He talk to me after the show, Was not in a rush to leave. He posed for photos with me. He collect lots of doodles for National Doodle Day.

Joan Rivers, Jane Leeves, Wendie Malick, Jon Lovitz, Valerie Bertinelli, Garry Shandling, Roseanne Barr, and of course Kevin Nealon.   And Kevin gave me this medallion. It was given to him by Brad Paisley. It reads Expect Great Things.  Kevin really made me happy, and Im thinkful for what he is doing for all of us that are affect by NF.