I wish Reggie would stop pasting his head on my body. Fun at the CTF NF Forum! #endnf
Tracy Chapman once wrote, “I’ve seen and met angels wearing the disguise of ordinary people living ordinary lives.”
Ladies and gentlemen, meet the newest Just Ask Angel, Pamela Skaufel!
Pamela is moving to Australia and can’t take everything with her so she wants to donate the really nice things she’s decided not to ship.
More next weekend!
It is with great sadness that I must inform you of the death of Byron Bibbs, Reggie’s brother and mechanic for the Just Ask World Tour bus. Byron suffered from COPD and apparently had an asthma attack at 1:30 am April 15 and died en route to the hospital via ambulance.
Services will be held this Saturday, April 25, 2015, at Merry Olive Baptist Church, 2804 McGowan and Delano, Houston Texas. Viewing at 10am. Service at 11am.
I have spoken with Byron’s family and they ask, in lieu of flowers, that donations be made to Byron’s favorite charity, the Just Ask Foundation.
In the early days of the Just Ask World Tour, Byron, a mechanic, proved to be a Godsend helping us fix the bus and making it road worthy to help us raise awareness of neurofibromatosis.
While Byron wasn’t a rich man, he never asked for anything in return for his services. I think he was very proud of his participation in the Just Ask World Tour and especially very proud of his brother, Reggie.
Because of Byron, the Just Ask World Tour lives on. And now, because of you and the Just Ask World Tour, the beautiful memory and legacy of Byron can live on forever.
Donations may be made online here at the GoFundMe Just Ask page at http://www.gofundme.com/justaskworldtour or by check, to the following address:
Just Ask Foundation
c/o “Byron Bibbs Memorial Fund”
4918 Heatherbloom St.
Houston, TX 77045
The Bibbs Family and I thank You!
The Just Ask Tour traveled over 1,300 miles – from Houston, TX to Scottsdale, AZ – to attend the annual CTF NF Forum! Over mountains, through deserts, eating more fast food than we’ve ever eaten in our life, Reggie and I made it and lived to talk about it.
It’s been non-stop meetings and presentations packed with news on the latest clinical trials for Neurofibromatosis patients, the latest research and the latest facts about this disorder that affects 1 in 3,000 people!
I’ll write more after the conference is over but this is what the CTF website had to say:
April 17-19, 2015: Scottsdale, AZ
The Children’s Tumor Foundation’s NF Forum is a national patient and family gathering hosted annually in different cities across the United States.
The NF Forum allows those living with NF, and their families, to connect, support, and learn from each other while attending seminars on relevant topics pertaining to neurofibromatosis.
The 2015 NF Forum features: NF clinical and research updates, sessions on the personal and social challenges of living with NF, interactive Q & A sessions with NF specialists, fun activities, meals, social time with friends and family, and much more!
The Children’s Tumor Foundation, mindful of the high cost of transportation and family expenses, has underwritten a significant portion of the registration in order to keep the registration costs as low as possible.