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Reggie’s Ad in This Week’s TIME Magazine

This ad is the one that ran!                                   We decided to run this ad later.

Reggie felt that maybe people might be shocked by his actual photo in the ad so he requested that we change the ad to the visual on his shirt. What do you think? If you were a reader of TIME magazine and turned the page to see a visual of a man with a disfigurement, would you be repulsed or filled with compassion? Be honest.

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Reggie and the Neville Brothers

How can I begin to tell you how much fun I had yesterday at the International Festival. The day stated out very well with meeting people who have seen me before. There where happy to take photos with me. I was remembered from last year. The food was terrific music was great. All types of music. I enjoyed the country music of course.

The best part of the evening was music from the Neville Brothers. Arron Neville. I actually got to meet the Neville brothers. A very big thank you to the Neville brothers for taking time to meet and take photos with me. Also thanks to my friends who joined us, Matt Jones, “The Tall One” and William Hughes, “The Smart One.” I said man I would love to meet the Neville brothers. Matt said, “I bet I could make that happen.” Well, he did and you see the photos as proof. I have to tell all of you I had the best time ever.

SEE PHOTOS OF CONCERT AND BACKSTAGE

It would be a really good thing if we could get a group together and do what I have been doing for a year. I can promise you it will change how people feel about NF, and you will feel better that you did it. Whether you have nf1 or nf2, it is a great thing to let people get to know who we are. I would really like my friend, Brian, to go with me some time. I really think people are more understanding now. It seems to me that people expect me to be there. How cool is that?!! Next stop, the “Art Car Parade!”

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Reggie, I need your help!

Reggie,
I have watched with admiration what you are doing for NF, with your website promoting awareness. Our 8-year-old daughter Victoria has one of the more severe cases of NF1, although you wouldn’t know it by looking at her.

She was diagnosed with NF1 at 9 months when our APRN noticed the Café-au-Lait spots. By 2 years of age, Victoria was complaining of headaches and was soon diagnosed with a tumor between her optic nerve and hypothalamus.
Victoria currently has learning disabilities, vision problems, and attention problems and with the development of a second growing tumor in her basal ganglia she is now experiencing almost daily debilitating headaches and psychological and social problems. We pray every day that the tumors will become stable and that she will not suffer any more symptoms.

Despite all of this Victoria is a vivacious, fun and independent little girl who amazes everyone that knows her.
We have watched hopefully in the last year as new discoveries have been made about this terrible disease and even as a cure becomes a possibility…. but it looks like the funding is drying up!!

I recently received this petition to sign to continue funding for research, and sent to all my friends and family, I am proud to say most of the signatures there are our friends and family. But it’s not the 1000 signatures that the initiator is looking to bring attention to this. With your connections and website I wondered if you would be able to get more exposure and get the petition signed.

Hope to hear from you …. and once again … Thank you for all you do to bring understanding, you are an inspiring and amazing man!!

~Ruth~

[email protected]
“The measure of a life, after all, is not it’s duration, but it’s donation”
Corrie Ten Boom

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Houston Highlights – WHAT A BLAST!!!

Reggie had to go get his MRI so I thought I’d post some photos from last night until Reggie had an opportunity to write the blog about Houston Highlight. I will say that special, special thanks go to corporate sponsor, Continental Airlines, Tom Koch, anchor at ABC 13, the Houston Roller Derby, Del Frisco’s Double Eagle Steak House, Sullivan’s Steakhouse, Joyce’s Ocean Grill, Chef John Salazar, and the Spritz Bar & Grill House. Great food! Great entertainment! Great cause! Great night!!!

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CELEBRATION OF THE CHEFS “HOUSTON HIGHLIGHTS” Tuesday, April 22!

The Texas Neurofibromatosis Foundation asked me to be part of the Houston Highlights fund raiser for neurofibromatosis. I was happy to be a part. As Host Chair, I ask that you join us on Tuesday, April 22nd, 2008 at the Hotel Derek 2525 West Loop South. There are tickets that can be purchased at the door. Please see the invite below with all the details!

Don’t miss the great silent and live auction! Continental Airlines has donated some really, really special tickets. Plus, original artwork, incredible Astros tickets, sports memoralbilia, and more!!!

Any NF patient with special medical or financial needs and would like to attend, please email me direct. [email protected] I would love to see you there!

CORPORATE SPONSOR:

“HOUSTON HIGHLIGHTS” PARTY AND AUCTION:

Tuesday, April 22, 2008
6:30–7:30 p.m. cocktails

7:30–10:30 p.m. party

EMCEE

Tom Koch, Anchor/Reporter from Channel 13

HOTEL DEREK
2525 West Loop South
Houston, TX 77027

PURCHASE PARTY TICKETS: $75 each
This pre-party will be accompanied by live music, hors d’œuvres from some of Houston’s finest chefs and live and silent auctions. CALL 972.868.7943

PURCHASE TABLE SPONSORSHIP: $1,500*
Participating chefs create a four-course gourmet dinner for 10 at their restaurant.
Private dinning to be selected on amutual agreed date with chef between
April 2 – June 30, 2008. CALL 972.868.7943

CHAIRMAN:
Ishma Blackwell
Keller Williams

HOST CHEF:
Steve Haug
Del Frisco’s Double Eagle Steakhouse

HOST CHAIR:
Reggie Bibbs

AUCTION CHAIR:
Elizabeth Bertrand

JUNIOR CHEFS:
Tyrese Blackwell
Fielding Castle

2006-07 Houston Highlights Participating Restaurants:
17 • Arcodoro Ristorante Italiano • Bistro Moderne • Crapitto’s Cucina Italiana • Crostini
Carrabba’s • Indika • Joyce’s Seafood & Steaks • Kiran’s • Mockingbird Bistro • Noe Restaruant
Olivette • Ouisie’s Table • Picho • Ra Sushi • Rainbow Lodge • The Raven Grill • Sabor
Shade • Spencer’s for Steaks and Chops • Sullivan’s Steakhouse • Taste of Texas • The Capital Grille
The Courses at the Art Institute • Zula

COMMITTEE:
Elizabeth Bertrand, Reggie Bibbs, Ishma Blackwell, Lou Congelio, Cindy Hahn, Aida Jerome, Susan Johnson
Katherine Jones, Carran Lane, Colleen Marchetti, Randi Stott

*Wine provided by Texas NF. Gratuity included. Restaurant assignments are based on sponsorship level, the date your payment is received and restaurant availability. Some restaurants may have other restrictions or specifications. Please contact our office for more information.