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NEW FRIEND MESSAGE FROM A MOTHER WITH HOPE

2007-002.jpgHello Reggie,

My name is Eleanor and my daughter was just diagnosed with NF. We noticed her beautiful little “birthmarks” when she was born and her daddy took such pride because his little girl had the same marks as he did in almost the exact places.

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She later developed freckles on her armpits and I would tease her that the freckle fairy must have slipped off her nose and landed there instead dropping her bag full of freckles.

Just this week during a check up for a mole on my son, the dermatologist noticed the cafe au lait spots and turned his attention to my daughter. You can imagine my surprise. These were after all JUST freckles. Unfortunately, the doctor did not break the news very well. I was reeling.

It has been 4 days since we got the news and I have had every emotion imaginable. Every fear…how will she be treated? will people reject her?…how will she deal with it? Is this painful? no grandchildren? Continue reading NEW FRIEND MESSAGE FROM A MOTHER WITH HOPE

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Houston Roller Derby Stars at Tomball Event, Aug 3!

tomball.gifOne of the best sporting events in Houston, in my opinion, is the Houston Roller Derby at Verizon Theater. I have been at least three times, and all I have to say you must go if you haven’t been. If you think it’s all fake and everything is rehearsed, think again. These ladies are tough!!! And some of them are real mothers! (No joke intended.)

I have enjoyed every game. They really treat the fans like they are the stars. I’m building quite a collection of photos with a lot of the team members. I still haven’t taken photos of everyone yet. Luckily, all of the team members are very accessible before and after the matches to talk, sign autographs, take photos and hang with audience members.

Hope to see you at one of the bouts. I know I will be attending as many bouts as possible.

Their next match isn’t until the third Sunday in August at the Verizon Theater downtown but many Houston Roller Derby members will be at the 35th Annual Tomball Night
Celebration
in Tomball!

This would be a great opportunity to come meet and talk with your favorite Houston Roller Derby stars! I’m hoping to get a complete list of all planning to attend so as soon as I get that, I’ll post it here!

Here’s all the important details:

Date: Friday, August 3rd
Time: 5pm – ??
Cost: FREE- so come hang out!
Where: Bob’s Wild West
Address: 400 W. Main, Tomball
Directions: Take 249 North, turn Right on Main
Fun, Food, Music, Prizes, and Fireworks!

See ya’ll there!

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“Uncle John” Turner Dies

FOR IMMEDIATE RELEASE
Contact: Mark Murray
ph: (512) 587-6833
email: [email protected]

“Uncle John” Turner
August 20, 1944 – July 26, 2007

Legendary Texas Blues Drummer Dies at 62

B.B King once exclaimed, “Man, I can set my watch to your time!”


Legendary Texas blues drummer “Uncle John” Turner died Thursday, July 26th, in Austin, Texas from complications related to hepatitis C. He was 62 years old.

Born in Port Arthur, Texas, Uncle John was a childhood friend and bandmate of legendary southeast Texas blues and rock guitarist, Johnny Winter. While playing drums with Winter in 1968, Turner convinced him to try a full-blown blues band format and sent for his friend Tommy Shannon to play bass. Success quickly followed, and the trio went on to record what many consider to be three of Johnny Winter’s finest albums: “The Progressive Blues Experiment,” “Johnny Winter,” and “Second Winter.” With fourth member Edgar Winter, they played Woodstock in 1969, as well as numerous other festivals and shows around the world. Continue reading “Uncle John” Turner Dies

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Uncle John Turner Benefit at Dan Electro’s Guitar Bar

Jerry LaCroixLou and I went to the Uncle John Turner Benefit at Dan Electro’s Guitar Bar today and had a blast! Uncle John Turner is a pretty famous drummer who is in dire need of a liver transplant. Uncle John has played and jammed with some really cool dudes like Johhny Winter, B. B. King, Jimi Hendrix, Freddie King, Muddy Waters, Junior Wells, Lightnin’ Hopkins, Johnny Copeland, Albert Collins, James Montgomery, Paul Nelson. and many more.

Yesterday afternoon was my first Blues concert! I got to hear some terrific music with Lou. I thought, this would be the perfect chance to reach more people, and tell them about NEUROFIBROMATOSIS. I said sure. Oh wow! I’m happy I went. I met so many nice people who treated me just as I want to be treated. No one stared, No one laughed, Only one seemed uncomfortable setting next to me. I met a lot of people, who I would never have met if I had not gone to the concert. The music was great. What a great benefit! I was proud to be there to help support the cause.

Some of the performers who donated their time and talent include Sonny Boy Terry with Little Ray Ybarra, Paul Orta, Texas Johnny Brown, Hightailers w/Little Screaming Kenny, Jerry LaCroix, Ezra Charles, Michael Milligan & the Altar Boyz, Rehabiliteens w/TC Cannon, Allison Fisher Orch w/Teri Greene, Erin Jaimes, Eric Tessmer and Gary Clark Jr. EMCEE was KPFT 90.1 FM’s Blueshound

Click here to see photos from the benefit and help me identify some of the performers! More info: www.uncathon.com

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Continue reading Uncle John Turner Benefit at Dan Electro’s Guitar Bar

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Houston Roller Derby Queens – Mistilla the Killa and DeMentia!!!

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I don’t want to show any favoritism or anything but I really, really enjoy Mistilla the Killa and DeMentia! Mistilla says in her blog to “tell somebody how beautiful they are” and that’s what I’m saying here. Mistilla and DeMentia are beautiful inside and out! And they made me feel great by being so nice.

It is easy to see that they are totally into the entire roller derby experience and really enjoy themselves. I love their attitude and I love the photos they took with me.

824932426_235010efc8_m1.jpgLou took this photo of Mistilla as the second half was about to begin. M.T.K. was stretching and getting ready to kick butt! I love the caption that Lou wrote for the photo, “Let me in, Coach! I promise I won’t kill anybody this time!!”

I want to invite everyone who comes to this blog to come to the next Houston Roller Derby event. Tickets are dirt cheap and the event lasts a long time. $15 at the door. Doors open at 5pm. Matches start at 6pm. The next match is on Sunday, August 19 at the Verizon Theater downtown!

Please come and I promise you’ll have a great time!!!

In the mean time, here are some blogs to go to so you’ll know some of the players before you get there!!!

Mistilla the Killa
Dementia
Carmen Geddit
Beverly Kills
Mary Choppins
Ellie McFierce
Private Beenjammin