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A Letter from our Founder, Reggie Bibbs

Dear friends,

Reggie and his brother, Byron.
Reggie and his brother, Byron.

As some of you may know, I am a man of meager means. Part of this is because of my NF, but part of it is also due to the way I’ve chosen to lead my life.

I live simply. I don’t need much and I am not a complainer. I have a firm faith in God, Country and my fellow man. I don’t need a big house, a nice car or perfect health because I have spent a lifetime figuring out what is truly important: living comfortably within my means and enjoying the companionship of others.

But no matter how frugal I may be, sometimes even the simplest needs of the Just Ask! Foundation are beyond my ability to provide.

When people find this out, they often say “If I only knew you needed something, I might have been able to donate it to your cause!”

Like when I needed new shelves for my t-shirts, and my friend Lou Congelio helped me out by donating some really nice shelves he wasn’t using anymore. Sometimes it just works out that a particular company or individual happens to have exactly what I need.

Reggie and his mom.

So, if you happen to be one of those people or companies that is in a position where you are able to make a positive difference in someone else’s circumstances—or mine— I am asking you to please do so.

As you may know, a big part of Just Ask! Happens via the Internet. It has truly opened the world to me. And now we have an online store!

I’ve always felt that life simply “comes at you” whether you are ready or not… and it’s how we react to life’s challenges that I believe is a person’s measure. For all of you reading this that have helped others through volunteering or charitable donations, allow me to say “Thank You” on behalf of everyone that ever needed the help of their fellow human beings.

Now, go out and “Make it a Tremendous Day!”

Reggie Bibbs

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NF Fact of the Day May 30th

Reggie in CanadaThe NINDS supports clinical research aimed at understanding the natural history of tumors in NF2 and determining possible factors that may regulate their growth patterns. Using diagnostic imaging, eye examinations, hearing and balance tests, neurologic examinations, blood and genetic testing, and quality of life assessements, researchers hope to better characterize the impact of NF2 on individuals and look for possible factors that may affect disease progression.

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NF Fact of the Day May 29th

Reggie at the Houston International FestivalThe NINDS is supporting ongoing research with a large group of children with NF1 to find associations between brain abnormalities and specific cognitive disabilities. Finding these links would give doctors an indication of the kinds of learning disabilities parents and their children could anticipate and help them develop early intervention programs.

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NF Fact of the Day May 27th

Reggie in DCOngoing NINDS-sponsored research continues to discover additional genes that appear to play a role in NF-related tumor suppression or growth. Continuing research on these genes and their proteins is beginning to reveal how this novel family of growth regulators controls tumors formation and growth. Understanding the molecular pathways and mechanisms that govern these key proteins and their activities will offer scientists exciting opportunities to design drugs that could replace the missing proteins in people who have the neurofibromatoses, and return their cell production to normal.

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NF Fact of the Day May 26th

MD AndersonIn the mid-1990s, research supported by the NINDS located the exact position of the NF1 gene on chromosome 17. The gene has been cloned and its structure continues to be analyzed. The NF1 gene makes a large and complex protein called neurofibromin, which is primarily active in nervous system cells as a regulator of cell division and functions as a kind of molecular brake to keep cells from over-multiplying. In addition to work on NF1, intensive efforts have led to the identification of the NF2 gene on chromosome 22. As in NF1, the NF2 gene product is a tumor-suppressor protein (called merlin or schwannomin).

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NF Fact of the Day May 25th

Reggie and MomThe National Institute of Neurological Disorders and Stroke (NINDS), one of the National Institutes of Health (NIH), is the primary federal supporter of research on neurological diseases. The Institute sponsors basic studies aimed at understanding normal and abnormal development of the brain and nervous system, as well as clinical trials to improve the diagnosis and treatment of neurological disorders. In conjunction with the other NIH institutes, the NINDS supports research focused on finding better ways to prevent, treat, and ultimately cure the neurofibromatoses.