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Reggie Bibbs Wikinews Interview

17115693_160x120.jpgReggie Bibbs was interviewed on Nov 23, 2007 for Wikinews describing what it is like living with neurofibromatosis and what he has done via his website, blog and other resources to increase awareness of NF.”

Click to watch Reggie Bibbs interview on Neurofibromatosis

26 thoughts on “Reggie Bibbs Wikinews Interview

  1. You are truly amazing Reggie, You have so much courage I hope one one day I can be half the person you are. Thank you for all you have and are doing. God bless you

  2. Thank you Patricia. I couldn’t do it with out the support of my friends.(you) and the others here.

  3. Well done, Reggie. You are a great spokesperson for everyone challenged with NF.

  4. My heart is full of joy. The nice comments are heart warming.

  5. Great job Reggie! You have done so many interviews!!

  6. Im happy too

  7. Greetings from New York City. It’s snowing and cold!!! Went to Rockefeller Center to see the Christmas decorations and went shopping. Nice place to visit but wouldn’t want to live here. Takes too much energy and money!

  8. Hope you have time for photos. Thanks for taking time to write.

  9. Lou, did you see the Statue of Liberty, and all the Mom and Pops stored, those are the two things I would like to see in NY NY, there is alot of other stuff too, those two just intrest me most.

  10. Hey Reggie, I hope you don’t mind, but I posted this interview on daily strength, you have gotton a lot of rave reviews, they are greatful and thankful for all that you do. keep up the good work

  11. Sure that is ok with me. Thank you for doing that.

  12. Great idea, patricia. The more we can do links like that, the faster we can raise awareness. Keep doing what you’re doing!

    And yes I saw the statue of liberty while in NY and ate in a lot of great places…some fancy, some dives but ALL good!

  13. Reggie I hope you dont mind if I send m y family the web page

  14. Hey Reggie
    Have you ever thought of conacting Oprah, she a lot of people watching her,

  15. Patricia I though about her lots of time. I’m not sure if she will want to do that kind of show. What do you think? I wouldn’t want to try to contact her and say hey do a show on me. She will think that Reggie is so full of himself.lol Which I’am. lol.

  16. I don’t think you’re full of yourself! I think you’re full of something else…

  17. Now that I think about it, the first part of it is true and the second part is all made up.

  18. I don’t think she would think you full of herself, it all depends on presentation, First explain ALL of the complications of NF, and then how very few people have even heard of it even those it affects more people then the other genetic disease combine, and that it can be deadly and very disabilty and all the pain that so many people are in a lot of pain because of NF, how many people go untreated because of ignorance of NF and your goal is to educate people on NF and hopefully find a cure for NF and the only way we can do anything to help ourselves is to first and formost is to get NF known to the public, how else will be able to raise monies and more attention to this horrible disease that we have if not to many people know of NF I found you very courages, to be strong enough and willing to go on national TV one of the biggest shows out there I think she would find you courages and strong and wonderful for having the strength to put yourself out there It takes a special person to go out in front of people like that, I don’t think she would think you are full of yourself
    What does anyone else think???

  19. I feel better about it after reading your comment. I was thinking that she might think. I was boasting or trying to fish for kind comments. I will have to research on how I would contact the show. I think it will take a lot of leg work to make it happen. It will happen though.

  20. Reggie I think that would be a good idea to contact Oprah show I think it would help get the word out about NF I honestly think you should do it

  21. Hey there an FYI I didnt know anything about NF or The Elephant Man till I met Reggie

  22. Delayed reply on comment 22. From what I have read John Merrit
    had a disorder other then NF. I will have to do a little more research. Because of His story I think NF was recognized.

  23. reggie, im not quite sure what your problem is, im not sure on your whole delima, maybe i should do some research on nf, idk. but sounds like ur a good guy, keep it up.

  24. Reggie,

    You are truly amazing! God bless you. You are an amazing man, and I am very very proud of you!

  25. Thank you for your kind words. I’m encouraged when I see that I’m making people happy. You have blessed me by your comment. Hope you will visit my blog and email me direct any time.

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