4045403638_2142700701_bYou may have noticed my absence recently.  I was a speaker at the Neurofibromatosis Society of Ontario in Canada. Their annual meeting was this past weekend and I was honored that I was invited to speak.  I met new friends, and was able to share with the group about JUST ASK and what we are doing here in the United States, as far as awareness of NF. It was a great meeting. We may have video posted soon, so stay tuned.



  1. Ooo a video! Nifty.
    I saw your pics when you put them up, Canada looks gorgeous. All the pretty collors, looks very vibrant. I’m glad you’re having a good time. Represent the U.S. Whoo! You go boi!

  2. Of course he was gone! There was a big chunk of my soul missing in his absence! It was like a dark desolant…ok my poetic side ran out so to sum it up, it just wasn’t the same without good ol’ Reggie.

  3. I was referring to when he enlisted Brady to join the ambassador. Anyway….must been good and she like what she heard. Hope to see some activity on chat now that you are back.

  4. This is the evening (Oct. 31) that most of us here in the USA will need to reset our clocks back one hour. I thought I would beat the game, and did that this morning… so I been confused on what time it is…. oh well. Reggie, I sent you a email article of the kicker of the Dallas Cowboys… He had a nephew with NF, for each point he scores, he is donating $25.00 to the CTF.


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