The Group made it to Washington, DC last week which was a task in itself with the winter storm hitting the east cost. The storm was gone, but there was still a lot of snow. Living in Houston, all my life. I have never seen that amount of snow in one place. Most of it was cleared away. It was enjoyable though.
The Neurofibromatosis Coalition team made all of the meetings. I believe all of the meetings went well. The amount requested is $25 million. The same amount requested last year. We were shaved down to 13 million. The Department of Defense (DOD) could have easily awarded more funding for studies, if the funding was awarded. The good news is there are studies that are waiting in line that could help. Write your local and State Representatives and let them know how important funding is…it will save lives for millions of Americans by finding a cure for all types of cancer.