Hello, everyone! Well, it’s that time of year again. This Sunday I will be joining NF, Inc. in Washington, DC to represent individuals affected by NF and advocate for continued and increased federal funding of NF Research. A delegation of NF representatives from organizations across the country, will be visiting our Representatives and Senators. They will receive a packet of information describing our requests, and we would like to include personal stories from those who live with NF. We encourage you to send your personal story about how NF impacts you or your family, and how important federally funded research is to you. All stories will be hand delivered in Washington. Please include your name and address on your letter, and fax your letter to (630) 627-1117 or email to firstname.lastname@example.org
Help Reggie get the word out!
You can now help support Reggie’s and the Just Ask! Foundation’s message of getting the word out about NF and help those affected by this all too common and little understood disorder.
Your purchase of a shirt, mug, or any other of our items allows Reggie and the Foundation to carry on the good work that Reggie and Lou started over a decade ago!