2357623769_f10072ed37_b.jpgMay is National Neurofibromatosis Awareness Month!newsmaglogos.gif2334669090_750680bb56_b2.jpg

Thanks to Laurie Selzer and my friends at MNI (Media Networks Inc – a division of TIME, Inc.), we will have a full page ad in the May Houston home edition of Time, Newsweek and US News & World Report magazines to help promote National Neurofibromatosis Month!

STANANDLOU Advertising was nice enough to prepare the attached ad that you see here inviting people to “JUST ASK!” about neurofibromatosis.

CLICK HERE TO DOWNLOAD A HI-RESOLUTION COPY OF AD

136 thoughts on “NEUROFIBROMATOSIS AD TO RUN IN TIME, NEWSWEEK and U.S. NEWS AND WORLD REPORT!

  1. that is a wonderful Ad! Reggie you are doing so much good! Thank you for your bravery and kindness.
    Lou really great work of course!

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  2. Oh yes I still have some shirts left if anyone wants to buy. I sold three just waiting for my prescriptions. Plus one online. Everything was ok. Bart Moore and Dr. Slopis said to say “Hi!”

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  3. Hey Lou Meredyth and everybody else that go to Starbucks. Talk about your great service. I have been going to the the starbucks on south Main and 610. I love that place. All of the workers are terrific! We got an espresso machine. I’m not good with it. They have been just great with helping me to make the perfect espresso. I was told if I need help they will
    show me how to use the machine. Now you tell me if that is a great deal. I will still go by there to get espresso even though I have a espresso maker. Just because it’s a place that makes me feel good.

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  4. Hey, Dementia, what a great surprise!!!! Welcome to the blog!

    To all of you on the blog who aren’t plugged into Houston Roller Derby, Dementia (Dana) is one of the premiere players in the league. She’s a jammer and captain for the Psych Ward Sirens and she is as pretty as she is dangerous on skates!!!!

    Here’s her profile at houstonrollerderby.com.

    http://houstonrollerderby.com/public/pag70.aspx

    Dementia and Mistilla the Killa will always be our two favorite Derby people for being so nice to us when we first started going to the matches. It was because of their kindness that we kept going back!

    To all of you who have never experienced Houston Roller Derby, the next match is April 13 at Verizon Wireless downtown! Game time: 5pm!

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  5. Dementia I can’t wait to see you again. I think it’s time to get another photo with you at one of the bouts. You all treat your fans like they are the stars, when you are. Thanks.

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  6. Oops I made a typo again. I had 3 orders when I went to MD Anderson. I actually sold a lot more then I expected. It’s a good thing I as many AS I DID. Wish I could set up shop there. It’s a good feeling that someone would wear one of my shirts.

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  7. congrats Reggie on selling shirts the more you sell and the more people buy and want them the more the word gets out about NF keep it up Reggie

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  8. Reggie you might talk to MD Anderson about selling your shirts there on the weekends the more the people see them the more people may want them to help spread the word about NF I think its a good idea

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  9. Oprah? Someone said Opera? Well I don’t know when or if that will ever happen. If would be a nice thing. Remember it’s not all about me. We are all in this thing together. It’s about all of us that have NF and our friends that support us. On the blog and your personal friends that that you yourself know.

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  10. Reggie , Not only is May , National NF Awareness Month, but it is also CELIAC DISEASE AWARENESS MONTH, , the disease that I have.

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  11. I have heard the dates for the 17th Annual Family Camp will be Sept 5 -7, 2008 at Camp For All, Burton Texas. So start planning now for a wonderful weekend.

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  12. That is a fantastic ad. Is it a national ad? If I can’t get a copy here you’ll have to bring one when we meet up in June.
    We’re in the middle of a sandstorm right now (really bad)
    wind gusts at about 60mph. I had to get out of it because I didn’t have a mask in my truck.
    I’ll let you know if the copy I get here has the ad.

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  13. Hey Jerry,

    I will make sure you get a copy. I’m not sure if it will be there. If not you WILL GET A COPY. I’m excited about it. You think we will need body guards on our European vacation?

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  14. Good Morning crew! How is everyone today? I’m feeling good.
    Love this weather. Having a coffee with Lou today. That should be nice. Past that just working and enjoying the moments. I woke up today and thought it was Weds. That’s always weird. But Tuesday it is. Hope everyone is happy and healthy today.

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  15. Good late morning,

    Meredyth Speaking of starbucks. since Lou brought it up. I’m will be having my daily espresso shortly. It helps me stay up and watch the old shows on TVLAND. Oh and send mean messages to Lou. 🙂

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  16. man Starbucks sounds really good today but I am going to go get lunch and get a Iced Tea today instead of a coke or I may go ahead and get a coke

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  17. If a place do not give free refills, I will not go there. At one time Chilis was like that. I could get free refills on ice tea, but on cokes was another issue. My sunday school class would go out to a place to eat after evening services (this was 29-30 years ago), the waitress come around and ask refill on drinks, sure, but did not say about a charge on cokes. When the bill came, we argue, and had the charges taken off. Do not kow if this was global (everywhere) or just at this location or just a one time incident.

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  18. there is a place in Pearland that is a hamburger joint they are real good well I was eating my hamburger and our ticket was on the table the waitress asked me if I wanted more coke I said yes and she took my glass and the ticket and charged me for a refill I think that is rediculous to charge for refills

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  19. Hey Reggie I love the old shows on TVland! I was a Bewitched freak and of Little House on the Prairie!

    Oh and too late on the Starbucks info Lou. I’m tons energized now!

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  20. Oh it’s never too late for starbucks. If you ever get to wired just watch TVLAND or talk to Lou. He will put you to sleep. I know I know. I just couldn’t let that one go. Sorry Lou. 😉

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  21. I am watching dancing with the stars, I wished I could danch like them, I would take lessons, but my husband would not like me dancing with another man.

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  22. Reggie , Make sure when you and Lou go to Starbucks , that lou get Decaf Coffe , he already hyped up enough without more Caffeine.

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  23. Morning yall,
    The new question is: “Who’s your Cousin?” LOL Obama and Pitt are cousins, and Clinton and Jolin are cousins, now that is scary!!!!!! 😛 Politic’s getting a little scarry and off to a new level. Just think we could all be related once remove way back when.

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  24. It was it was in the news!!!!! They gave a little story non how they were related, they tried McCain but had a hard time with him. Obama is related to about 6 different presisents.

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  25. Hey I just have to tell all of you something. I hope you can get Blue Bell Ice Cream. OMG! You just have to try this Flavor Blue Bell makes. Cake Batter. WOW! It’s so good. I will do a cammercial for them if they ask me. FREE! As long as I can get free ice cream

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  26. No it s not a new one it comes around every spring Reggie hate to burst your Big Bubble.Mint Chocolate Chip rocks as does Ben& Jery’s Bananas on the Rum.

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  27. Thank you for reminding me. We talk about that at our last meeting, and all this other stuff came up. It’s a good thing to stay busy though. I will do that before I leave for the doctor tomorrow. I have a busy day. Mailing t-shirts to Italy tomorrow. Just got the order tonight.

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  28. I’m back from seeing the doctor. Great report. The doctor told me that area on my leg was not a tumor, but a sis. He said it is not a tumor and it is not cancer. He also told me later he will do another MRI to see how much the swelling has decreased. So I had a great with good news.

    Reply
  29. We have a couple new features on the blog! If you scroll down and look on the right side, you’ll see 3 new things: 1. Blog Stats
    2. Videos 3. Photos from Flickr.

    Obviously, we have some kinks to work out but hopefully we’ll have it all figured out in a few days. Stats are over 87,000 which is incredible.

    Reply
  30. Lou or Reggie: Only suggestion I have, if there is anyway, you can put or have a indication if a blog have any updates added to them. For example on my flickr on certain groups, it will let me know if there been any updates added. Just a thought.

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  31. hey everybody I am having surgery next Thursday it will only take about 15 minutes I am having a small tumor removed from my leg I will be ok though its nothing new to me

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  32. Hello! Great job, keep it up! I have a step-daughter with NF type 1. She also seems to have a few risk factors for Celiac disease (I’m also a nurse). I wanted her tested, but the doctors didn’t order it. Does anyone know if there is an affiliation with NF Type 1 and Celiac? Celiac often goes in conjunction with other inherited disorders such as Diabetes Type 1, autoimmune disorders, autism, seizures in certain parts of the brain, dyslexia, and a few others… I’m trying to raise awareness with doctors and the public. Newer statistics say it may be as high as every one in 80 people. If it is a secondary diagnosis, a gluten free diet often helps control their primary illness. Reggie is an inspiration!

    Reply
  33. Hi Julie,

    thank to for your visit, and kind words. I will pass on your questions to someone who can answer your questions better then I can. Thank you and my best to your step-daughter.

    Reggie

    Reply

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