HOLD STILL

I hope you are enjoying the blogs and the fun we are having here, as we learn about Neurofibromatosis. We are here for everyone who has NF or has a family member with the disorder. I support you as well as my friends on my blog. Let’s continue to share our stories and information with each other about NF. With all that being said, I would like to share a photo with you. My friend ADGIANT or better known as Mr. Smart Mouth. This was a dream come true shoot. The only bad thing about this, is the photographer didn’t let me finish.

105 thoughts on “REGGIE VERSUS ADGIANT

  1. Alright now, there will be no fighting amongst the boys! BEHAVE!! I already have to keep my 2 year old and 4 year old in line and I can put up a mean fight myself! lol Great picture!
    PS – Reggie I think you can take him easy ๐Ÿ˜‰

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  2. man I have never tried it but people say its really good didd you see the picture of the Reggie voodoo doll on the blog page I think that is mean

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  3. Let me explain the photo. I ask Lou if I could use the photo. We was just playing around taking photos for the company, He said do something and that was the only thing I could think of. Thankl goodness he didn’t hit me. It was all in fun. You see Lou thinks I’m just a teddy bear. The one Elvis sings about.lol

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  4. welcome back Reggie you said you will drink some too it was me and Shelley talking about coffee she drinks starbucks and I told her to drink some for me next time because its to expensive for me

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  5. Then that mean Lou will have to buy two. One for me and the one I will drink for you. I smell Coffee . I think mom is making coffee right now. For real.

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  6. You guys remind me of my father and this guy he knew….dad had a voodoo doll that he made of the man and used to beat on it with a wrench whenever he would come into the shop (dad’s a mechanic and the guy was a service writer….can’t remember his name). It was classic.

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  7. Its just a joke. Lou of funny and he is 2 can short of a six pack. He will even tell you that. lol Tammy did you know about the nf camp? It’s suppose to be next weekend.

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  8. Let’s not loose focus. I have a question for everyone. Dose anyone know if diet has anything to do with how nf affects us. Has any studies been done,to see if certain vitamins might help in some way.

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  9. One thing I want to make sure that everyone knows, That I am NOT! a doctor. One I do not give medical advice. I was asking if any one knew if studies have been don on NF patients to see what or if any affects diets of vitamins has on NF. Just wondering. I haven’t heard anything.

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  10. Reggie my Opinion is I dont think vitamins well affect the NF I drink like sometimes 5 ensures a day they are good for you and healthy for you I also take one a day vitamins and it makes me fell better so my opinion is I dont think it would affect the NF although I dont know for sure though I would ask a doctor

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  11. Vitamin D deficiency associated with number of neurofibromas in neurofibromatosis 1

    Published Online First: 29 March 2006. doi:10.1136/jmg.2006.041095
    Journal of Medical Genetics 2006;43:810-813
    Copyright ยฉ 2006 by the BMJ Publishing Group Ltd.

    M Lammert1, J M Friedman2, H J Roth3, R E Friedrich1, L Kluwe1, D Atkins4, T Schooler5 and V-F Mautner1

    1 Department of Maxillofacial Surgery, University Hospital Eppendorf, Hamburg, Germany
    2 Department of Medical Genetics, University of British Columbia, Vancouver, Canada
    3 Limbach Laboratory, Department of Endocrinology/Oncology, Heidelberg, Germany
    4 Institute of Pathology, University of Witten/Herdecke, Wuppertal, Germany
    5 Department of Paediatrics, University of British Columbia, and Child and Family Research Institute, Vancouver, Canada

    Neurofibromatosis 1 (NF1) is a tumour suppressor gene syndrome characterized by multiple cutaneous and plexiform neurofibromas. Focal osseous abnormalities, short stature, and decreased bone mineral density are also frequent in people with NF1. We measured serum 25-hydroxyvitamin D concentrations in 55 patients with NF1 and 58 healthy controls, and correlated the findings in the patients with NF1 with their estimated number of dermal neurofibromas. Geometric mean (SD) serum 25-hydroxyvitamin D concentration was 14.0 (1.6) ng/mL among the patients with NF1 compared with 31.4 (1.7) ng/mL among healthy controls (p<<0.0001). The serum vitamin D concentration and number of dermal neurofibromas reported by patients with NF1 were inversely correlated (Spearmanโ€™s {rho} = โ€“0.572, p<0.00001). The occurrence of low serum vitamin D concentrations in people with NF1, especially those with many dermal neurofibromas, may provide new pathogenic insights and have important therapeutic implications.

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  12. I dont know much about NF but I know this we all need a diet of lean protein veggies good fats and watch carbs we would all feel better

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  13. Shelley I am drinking a smoothie from smoothie king and a little later on I will be drinking me a ensure dont forget to drink some starbucks for me

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  14. someone said barb be que, the best bar b que sandwich i ever had was at McKenzies in Huntsville, “Poor Boy”, they chop up beef and links togather like chop beef, I am thinking that is were I just might have lunch tomorrow.

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  15. then if you ever make it to Huntsville go to McKenzies, his brother has a place in conroe, also called McKenzies, it is not a chain, one brother has one in Conroe, and other has one in Huntsville, I live in Montgomery and work in Huntsville. They both have a good bar b que

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  16. Hello friends,

    Most of you know that I will be attending the NF camp this weekend. I would like to give you a few things to think about while I’m gone. I know Lou would be more then happy to be a part of my idea. The reason I have post on this topic it works for this topic. My question is What picture would you like to see of Adgint. My hitting him a pie dunking booth. Dumped with lots of water. Lets get lots of comments and see what we can get Lou to agree to.

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  17. hey lou drink a martini for me, i would have some crown, but alcohol, dilantin and siezures dont make a good mix, I dont have cancer

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