Dr. RiccardiTo all my friends who are reading this blog, I’d like to introduce you to my “Friends of Neurofibromatosis” group on Face Book. We have quite a few members now, over 70. I am now in contact with a few good friends that I had lost contact with from the 1980s. My friend Dr. Vincent “Vic” Riccardi is now part of our “Friends of Neurofibromatosis” group. Iā€™m sure anyone who has NF may know him or have heard of him. Dr. Riccardi is a legend when it comes to neurofibromatosis research and treatment. He has not only been a good doctor, but a good friend. He has done a lot for NF. At one time he was on the Board of the Texas Neurofibromatosis Foundation. He was its Medical Director for many years helping decide where to give the money we raised for research. Hopefully, maybe we could get him to come to the blog from time to time.

n71001931_31763618_8129.jpgTwo other friends have showed up too! Megan Phillips and Andy Ganster are now online with us. Megan, Andy and I shot some TV commercials with Lou back in 1989. That’s when we first met Lou through Bob Hopkins, then the TNF Executive Director. Those were some pretty serious commercials but they helped neurofibromatosis get some much needed awareness.Andy Ganster

I hope anyone visiting this blog will also join us on Facebook as well. We will all learn as we go alone on Facebook. The games and quizzes are fun and challenge. It a good way to find friend you may have lost contact with. Believe me, I know!

Here is the link!

315 thoughts on “Friends of Neurofibromatosis Group on Facebook

  1. yes Reggie that is true you can also make new friends on Facebook I have added some friends including Megan I also sent her a message to check out Reggie Bibbs.com and told her to join the blog and also told her its for NF awareness and join in the fun

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  2. I want to say I saw Dr. Vinceant Riccardi one time too. A long time ago it would of been one time in 1986 or 87. I really don’t see a doc anymore for my NF, I probally should. Maybe I will again.

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  3. I remembered when he came to the NF Camp in 1995. We went to that waterpark where people go to between Austin and San Antonio. He needs to come again to camp

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  4. I know what you mean, I don’t like any of the canidates, the one I did drop out. Fred Thompson of Law and Order. It is so sad what we have to vote for.

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  5. I’m going for McCain – of course I’m a military spouse, so what do you expect? lol
    I think that with the war still going on and things escalating over in North Korea that it would be a great benefit to us to have someone with military experience in the White House. He’s the one candidate that is most qualified for the job anyhow. Obama has WAY too little political experience and Hillary, well, I wont even go there. lol

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  6. Speaking of Hillary, I accidently almost sent a Hilary joke to my boss, who I am not sure a Hilary fan. OOPS but thankfully was able to stop it before it went all the way thru, thank God for a glitz, that was a close call. I was really scared that day. That was one time I was so very happy that the server went down. šŸ˜€

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  7. hey ya’ll im really really upset about what happened to my mom but now to top it off I am giving my boxer back to my cousin because I have taken her to the vet because she has been throwing up and the stupid vet dont know whats wrong with her but I can not afford it anymore its just to expensive man I am really just upset nothing is going good here

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  8. I am sorry to hear that. I wished there was something I could do, just know that I will keep you and your family in my thoughts and prayers.

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  9. Brian some time if feels good to vent here. You can and you have friends here that will support you. You have to think about you and your mom are together. I know she would not want you to worry about her. Just try to help her as much as you can. Maybe you can let your cousin keep the dog until the dog is better and you can help your mom more.

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  10. thanks Patricia I wish I could do something also the vet cost me 200 and something to update her shots and the first time we took her to the vet for throwing up it cost me 185 I think and they told me they dont really know whats wrong now to me thats stupid to pay that kind of money when they dont even freaking know whats wrong they are the vet they go to school for that stuff they should know whats wrong

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  11. I havnt been outside yet, but I have to go out and shovel the walkway soon before it gets too much or else it will freeze over tonight, that always happens.. last time it did this we ended up with about a 2 inch thick layer of ice for a week.

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  12. Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama, Obama!

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  13. Yea, I wonder who Lou wants! I still don’t know who I want. No one really has convinced that they are worthy to be my president just yet.

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  14. Why doesn’t anyone like Hillary? It seem that everyone that I have talk to don’t want her. They will be better off by being a team rather then fighting each other. I don’t think that will happen.

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  15. According to last night, she sure did praised him maybe they should run togather. I just don’t like her. I would not vote for. I would like to see a woman president just not her, I would like to see Conda lizza Rice run I would vote for her. I think she would do a good job.

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  16. hey Patricia sorry to change the subject here but I have decided to keep my boxer and not give her back to my cousin I will just keep trying different things and work with her I just love her to much to part with her

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  17. I honestly dont know Reggie I am feeding her some like diet food I think that we bought from the vet but also her blood work that we had done at the vet came back all good so I dont know what is wrong with her but my next step is to have x rays done the vet does not know what is wrong either

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  18. One time spot ate a june bug and he threw up all night long, he finally got better. we feed our dogs science diet and they do good on that, some times they eat something they are not suppose too and get sick, I am glad you are keeping your dog, I hope she gets better. they are like kids, they want to put every thing in thier mouths.

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  19. True Patricia they are like hoover vaccuum cleaners any time they see something that smells they want to suck it up like a hoover

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  20. My dogs eat everything in sight. One time I had a peanutbutter cookie in my hand and emily grab out of hand and ate it. she is a bit spoiled.

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  21. yeah my dog drank my moms coffee she left sitting on the TV tray then she came to the computer room while mom was on the computer and she had the coffee cup in her mouth

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  22. Emily, he mentioned your name when he did it. He said something like, “I’d draw a picture of Emily but I’ve always had trouble drawing a horse’s butt.”

    True story.

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  23. Alright Lou you have to be nice to me now.. I’m having really bad contractions, lol. I dont think I’m going into labor, although I was out shoveling snow for about an hour earlier, but I’m in pain!!

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  24. I would never ever ever name my baby after Obama. ICK!
    I’m still having contractions, I started timing them, they are pretty close together, I am just waiting to see if they stop or not. Its been about 1 1/2 hours now.

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  25. Emily I think you need to go to the hospital if they are pretty close dont wait till the last minute then you would really be up the creek without a paddle

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  26. Nah, I hate hospitals, I always try to stay at home for as long as I can when I’m in labor. With my second son I didnt go to the hospital til I was in tears from the pain.

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  27. Emily how far do you have to travel to the hospital? With the weather being the way it is, make sure you don’t wait to long. that would be funny if your baby was born on Lou’s birthday.

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  28. I almost had to deliver my sister’s baby. I was running around the house like who ever that was saying the sky is falling. The 911 operator was instructing me what to do, while the ambulance is on the way. I told my sister, don’t have the baby yet. wait.

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  29. When I had Vanessa, they said I was dialated to a 4 the “STUPID” nurse that was hooking me up said on no something not right, and just walked out of the room, and left my ass there I was all by myself I was like what the hell do you mean????? they had not yet got an iv in me I was so scared what was wrong is I was not dialated to a 4 I was dialted to a 10 a big fat 10 I got to the hospital just in time. they did not have time to run a iv give me drugs are anything. I was really mad at that stupid nurse saying “something is not right” and then just leaving me there.

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  30. My hospital is about 5-10 minutes away depending on traffic, probably more like 10 today with the snowstorm.
    The contractions are coming anywhere between 2 and 5 minutes, they have been for about 1 1/2 hours now, they are consistant in time but they are still coming, I just now had to stop writing this because of one, lol.

    Wait, when is Lou’s birthday??? I will have to cross my legs and keep this baby in til thats passed!

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  31. that is funny Reggie, Vanessa father did not want to take me to the hospital, he kept saying but it is not time yet. what if you are not in labor what do they do, I said they send me home, but if I am and you don’t take you deliever a baby so what do you want to do, he was a real stupid a$$.

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  32. Don’t wait too long, you know how babies can be all of sudden decide “here I am” at least that is what Vanessa did. And she is still doing that to this day. lol

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  33. I will give it another hour or so and if they havnt stopped I will call my doctor to see what I should do. I dont want to have him today though! My kids leave in 2 days, I dont want to have the baby while they are still here because my husband might not be able to be in the room with me if he has to watch them.

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  34. Emily if you wait till ur in tears cuz of the pian it will only get worse I am NO Dr but my opinion is go now before its to late you need to go to the hospital now

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  35. Okay, I am going to get checked, I have a friend coming over to sit with the kids for a bit so I can at least get checked. So I may or may not be back later tonight, lol. If you dont hear from me by tomorrow morning then you should assume I’ve had the baby I guess, lol.

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  36. Hey Lou,

    I just talk to Lisa. My sister. Just let me know what kind of girl scouts cookies you want. There is a lady at her job that has them. Lisa will get them and I will bring them to you. You
    can give me the money when I see you.

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  37. lol Little Mortimer, as Lou calls him, will have to wait a day or two. I am only in early labor so they sent me home to wait it out a bit. They did give me something to help me sleep tonight though! So it could be tomorrrow or the next day, but its definitely coming!

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  38. hey everybody whats going on good luck Emily I hope everything goes well dont tell the baby that Lou is the Father then the baby might not be so happy

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  39. my boxer is doing pretty good Reggie shes not really that big but she is doing pretty good so far we are feeding her pedigree can dog food its moist and not dry and she has not thrown up yet so so far so good

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  40. Lou, no, our child hast been born yet, lol. You will of course be the first person I alert.
    I had my shower today, it was alot of fun and I got some great things for the baby. I will post the pictures when I get them uploaded!
    I’m stillllll having the contractions, but I dont feel like I’ve progressed any so still just waiting!

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  41. I want to be there for you, Emily, but I’m afraid I can’t get a flight out in time. Please know that I’ll be thinking of you during the next round of drinks!!!! ox your illegitimate child’s father, Lou

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  42. Alrighty, I added my baby shower pictures to my Facebook photo album if you guys want to check them out.
    The kids just left for Ohio, I am enjoying the quiet, lol.
    Someone get this darn baby outta me!!!

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  43. Hey Brian, I’ve been better, lol. Just waiting for this baby to decide to come out already! How are you doing?

    Reggie, Lou better be nice to you every day or else I will whoop his butt.

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  44. I have been in Galveston taking care of MIL, good days and bad days I hate cancer it does drain everyone around not just the one it attacts but to everyone watching what it does to the ppl you love takes a chunk out of you.

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  45. Shelley did you get to see the photos we took. That way you can get kind of an idea how things went. It was a nice thought that you would have like to go. Maybe you can come to camp or to the nf picnic if we can get that off the ground.

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  46. Lou, he’s still in there. HE WONT COME OUT!!! I spent all night last night having horrible contractions about 2-3 minutes apart and when I got up to walk around they totally stopped. I am getting tired of this, I am sore and exhausted. Blah.

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  47. Emily, bless your heart! Would it helped if I had a double tall latte with chocolate junk on it right now? I’d do it for you, Emily, because I know you’d do it for me. Right? Emily? Emily…?!!

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  48. My grandfather rebuilt the old wooden telescope that is (or was) on display at the Museum of Natural Science in Houston. He was a volunteer there for years & found it in a storage room in pieces. He had a special lens to look at the eclipse and take photos.

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  49. I will ask Lou. Lou how can Wendy get a picture next to her name? Wendy did you see an option that or anything that let you add your name and email address? Is there a way Lou that everyone can add there own photo with there comment?

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  50. #198
    1. Scroll to top of this page
    2. Click on “My Account” at top left of screen
    3. Click on “Edit Profile”
    4. Click on “Browse” to find photo on your computer
    5. Upload
    6. Done!

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  51. Hey, I figured it out, you have to have a word press account to be able to post you pic, I just created an account and a pic of me and my daught should post soon.

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  52. Good morning everyone. Alright, so lets make a gameplan.. what the heck do I gotta do to get this baby outta me today?! I’ve tried walking and spicy food and my husband refuses to have sex with me because he wants a few more days without any kids at home, lol. So someone help!

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  53. Um… Lou, how about.. NO! Someone at the pharmacy told me to drink castor oil, but I absolutely refuse! My doctor said that castor oil can put you into labor, but if it doesnt then it will just land you on the toilet all day. No thanks!

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  54. Emily encourage your baby that he won’t see Lou anywhere around and it’s ok to come out. Lou remove your picture from your profile that will help also. I can’t believe no one has thought of that.

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  55. Emily, all I know is about is walking, eating spicey food, corectol, and sex. There is nothing else I know that will make the baby come any sooner, then what he wants too.

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  56. Lou, I’ve never had a photo on here, too much effort, lol. And um, as for later.. you go ahead and talk to my husband about that!
    We are going up to the casino later this evening so Bill can play some poker and I am going to walk around the shops and try to get labor started again, and maybe spend whatever money Bill wins, lol.

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  57. Reggie,
    I had a great time wiyh you today and look forward to tommorrow afternoon…..Lou you picked an excellent place to go tonight, Reggie you have to admit that was one of the nicest IHOP’s we’ve been to!!!!!!!!!

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  58. I received this recently, thought I would share this, I thought it was funny.

    THE SPOILED UNDER-30 CROWD!!!

    If you are 30 or older you will think this is hilarious!!!!

    When I was a kid, adults used to bore me to tears with their tedious
    diatribes about how hard things were when they were growing up; what,
    with walking twenty-five miles to school every morning uphill BOTH ways
    yadda, yadda, yadda!

    And I remember promising myself that when I grew up, there was no way in
    hell I was going to lay a bunch of crap like that on kids about how hard
    I had it and how easy they’ve got it!

    But now that.. I’m over the ripe old age of thirty, I can’t help but
    look around and notice the youth of today. You’ve got it so easy! I
    mean, compared to my childhood, you live in a damn Utopia!

    And I hate to say it but you kids today you don’t know how good you’ve
    got it!

    I mean, when I was a kid we didn’t have The Internet. If we wanted to
    know something, we had to go to the damn library and look it up
    ourselves, in the card catalog!!

    There was no email! We had to actually write somebody a letter…with a
    pen! Then you had to walk all the way across the street and put it in
    the mailbox and it would take like a week to get there!

    There were no MP3’s or Napsters! You wanted to steal music, you had to
    hitchhike to the damn record store and shoplift it yourself! Or you had
    to wait around all day to tape it off the radio and the DJ’d usually
    talk over the beginning and @#*% it all up!

    We didn’t have fancy crap like Call Waiting! If you were on the phone
    and somebody else called they got a busy signal, that’s it! And we
    didn’t have fancy Caller ID Boxes either! When the phone rang, you had
    no idea who it was! It could be your school, your mom, your boss, your
    bookie, a collections agent, you just didn’t know!!! You had to pick it
    up and take your chances mister!

    We didn’t have any fancy Sony Playstation video games with
    high-resolution 3-D graphics! We had the Atari 2600! With games like
    ‘Space Invaders’ and ‘asteroids’ and the graphics sucked! Your guy was a
    little square! You actually had to use your imagination! And there were
    no multiple levels or screens, it was just one screen forever! And you
    could never win. The game just kept getting harder and harder and faster
    and faster until you died! Just like LIFE!

    When you went to the movie theater there no such thing as stadium
    seating! All the seats were the same height! If a tall guy or some old
    broad with a hat sat in front of you and you couldn’t see, you were just
    screwed!

    Sure, we had cable television, but back then that was only like 15
    channels and there was no onscreen menu and no remote control! You had
    to use a little book called a TV Guide to find out what was on! You were
    screwed when it came to channel surfing! You had to get off your ass and
    walk over to the TV to change the channel and there was no Cartoon
    Network either! You could only get cartoons on Saturday morning. Do you
    hear what I’m saying!?! We had to wait ALL WEEK for cartoons, you
    spoiled little bastards!

    And we didn’t have microwaves, if we wanted to heat something up we had
    to use the stove or go build a frigging fire … imagine that! If we
    wanted popcorn, we had to use that stupid Jiffy Pop thing and shake it
    over the stove forever like an idiot.

    That’s exactly what I’m talking about! You kids today have got it too
    easy. You’re spoiled!!!!!!!!!

    You guys wouldn’t have lasted five minutes back in 1980! Oh yea, and a
    seatbelt was Mom throwing her arm across your chest every time she hit
    the brakes.

    Regards,
    The over 30 Crowd

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  59. Oooo I love IHOP! I dont think we have one around here though.
    Ugh, it is way too early, but I cant sleep any more because I so sore.. I go to the doctor at 9:45 so keep your fingers crossed that I get some good news!

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  60. Well only another day or so til I can have my Starbucks again! The doctor said that I could go at any time, I wont get all descriptive, lol, but I progressed quite a bit over the weekend and she said that my body is definitely ready, its just a matter of waiting for the contractions to start again.

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  61. no Reggie its my truck I drive everyday and its black chevy extended cab step side its a really nice truck I will get some pictures of it and send them to you so you can see it

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  62. hey Shelley I will send the pics when I take them and get them downloaded and will send to Reggie and he can post them then you can see it its Really nice I love it

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