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Leaving on a jet plane to Vancouver, British Columbia

Today, Steve Bass (PHOTO ON LEFT) and I will be traveling to British Columbia, for the NF Canada and BCNF symposium. Steve Bass is the owner of srbservices. and  someone who has been a very good friend, is taking time from is business to help me with my travels. This a tremendous help to me when Steve can juggle things around to make things easy for me.   All of this at his own expense, to help a friend, and the Just Ask Campaign.

The Symposium promises to be exciting. Looking forward to seeing my good friend Dr. Riccardi!  Yes, he will be there, and I will have a tough act to follow. I have to speak after Dr.Riccardi (PHOTO TO THE RIGHT).  Not too worried about it. He refers to me as the secret weapon for nf.  Wow, that means a lot coming from someone like Dr. Riccardi.  Stay tuned as we hope to send photos as we get them.

I need to bring Dr. Riccardi a new gold Just Ask! shirt. It would look great with his tan! I mean just look how good it looks on me!!!

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SUGAR RAY LEONARD IS ON THE BLOG!

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OCT 16, 2009

HEY REGGIE HOW ARE THINGS GOING? I’M IN LONDON HEADING BACK HOME AND I FORGOT TO TELL YOU THAT IT IS MY HONOR TO WEAR MY DEAR FRIEND’S T SHIRT! I LOVE YA MAN BUT YOU NEED TO SEND ME ANOTHER T SHIRT TO SPREAD THE WORD ABOUT YOUR CAUSE CHAMP! ALL THE BEST! SUGAR RAY LEONARD

Guess who is wearing one of my JUST ASK! t-shirts?

You probably already know from the photo you see here. Yes my friend Sugar Ray Leonard. I was so happy when Ray ordered one of my t-shirts. He told me he would be proud to send me a picture of himself wearing my shirt. He kept his word and I have the pictures to prove it. I have known Ray for a long time and he is always supporting my in everything I have done. Imagine someone as famous as him supporting my efforts in NF awareness. He’ll always be the “Champ” in my eyes!

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A NOTE FROM KEVIN NEALON.

3090342427_26cb9dd5b3_b3090342561_eb020396fa_bThis weekend I got the shock and surprise of my life! I was going through my emails looking for a phone number when I came across an unopened email dated November 14! It was from my new friend Kevin Nealon, from Saturday Night Live, who I had just met the night before.

I have no idea how I missed this very important email but I guess it was because I was traveling and wasn’t able to check email till I got back home. Anyway, here is the very nice email that Kevin wrote plus the photos he sent.

Hey Reggie,
So great meeting you last night, and your friends! I’m so
flattered that you guys came to my show. Oh, loved your website, too!!
Susan and I loved checking out each category. Great videos and pics,
great coverage on the news stations as well. We’re so impressed with
your courage and your raising awareness of NF. What a difference you
are making! Please keep us updated on the foundation.

Attached are a few pictures of me wearing your shirt. Btw, it
fits me like a glove. I have a new cause now. 🙂

Best wishes,
Kevin and Susan

Most of you have seen the photos from my trip to Manhattan Beach California, when I went to visit my friend, Scott. Well, on the visit, Scott suggested we go see Kevin Nealon at the Comedy club. That is where it all happened. After the show Kevin came over to meet me. It was there when I shared with Kevin and his Wife Susan about NF. What a nice couple they both are. So kind and understanding to NF, and the JUST ASK campaign. I’m proud that Kevin is wearing one of my JUST ASK! T-shirts. You never know where you may see one next. Thank you Kevin and Susan for your support. Hope to see you soon.

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My friend Francis Boyermadrieres from France

3010703046_f1e2ee6e51_b3010702912_474b0f041b_bDear Reggie
I received to day your tee shirt. I’m very very prud to wear it! I only do it for great events for neurofibromatosis! As you can see It fit me very well. Very sooner I’ll publish in my blog a text about my purchasse. Dis you see my slide shot about the naughty little toad? In this clip I wear a French neurofibromatose tee shirt size M because  the French association own  S tee shirt no more. I hope the sending was not too expensive for you. Kind regards my friend
– Francis

If you would like to email Francis, his address is f.boyermadrieres@laposte.net

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Emily’s Name-My-Baby Contest!

y1p3lb28exaadeupbygs6ljvchkt687fu08plfbpuxe1g9ggcoz98ivujlltbg8-w38nmhdxtpmsto.jpegI have a baby due in March. This is a contest to help my husband and I select a name, and also to have some fun. We don’t guarantee we will use a winning name selected for the contest, but it’s a real possibility. Submit your entry via this blog per the instructions below. Enter as often as you like, as many complete submissions per blog entry as you wish.
– Emily
Continue reading Emily’s Name-My-Baby Contest!