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Raffle Prizes Include

Houston Astros Tickets, Wildcat Golf Club Passes, Gift Certificates from Menchie’s, Mandola Deli, Tila’s Restaurante y Bar, with more added hourly!

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26 Tickets to be raffled!

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$20 Menchie’s Gift Certificates
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Mandola Deli Dola Bills

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4 passes. No Blackout Dates!

If you are unable to attend Reggie’s Fundraiser, you still can help by visiting

http://www.gofundme.com/justaskworldtour

 

 

Posted in NF.

 

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I just talked with Reggie W. Bibbs and although he will be released from M.D. Anderson tomorrow, he will not be able to attend the fundraiser on Sunday that we have had planned for a couple of months.

He was to bake some cakes and hang out with all his friends but he will be wheelchair bound with an IV pole and will need medical supervision.

But he asked that we go ahead, have fun, and have the fundraiser anyway and he will join us in spirit and possibly on Facebook!!!

Below is a link to the save the date Web post. A more creative poster will take its place tomorrow.

If you cannot attend the fundraiser or don’t live in Houston, you can still help out with a donation to the Just Ask Foundation Gofundme campaign at

Http://www.gofundme.com/justaskworldtour

Thank you all for your prayers and concern.

http://www.justaskfoundation.org/save-the-date-just-ask-fundraiser-sunday-july-12/

Posted in NF.


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Just Ask Fundraiser at Poison Girl

Sunday, July 12, 2015

4 to 10 pm

(713) 527-9929

1641 Westheimer Rd, Houston, TX 77006

Includes:

All Day Raffles!    Bake Sale by Reggie Bibbs     Art Cars     Just Ask t-shirts   Houston Roller Derby skaters         Astros ticket raffles!     Maybe a food truck!

All proceeds benefit the Just Ask Foundations and the Just Ask World Tour!

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Hands down, dive bars are our favorite joints to hang out in and Poison Girl in Houston is no slouch when it comes to providing good, clean dive bar fun. There’s a few pinball machines, cheap, heavy drinks, a hip cast of urban bohemians bellied up to the bar and a killer jukebox—this one being heavily, okay totally, steeped in all music Texas, from country to punk, rockabilly, indie and some hip-hop. Poison Girl brings to the Houston bar scene exactly what it seemed to be so lacking in, a dive bar that knows it’s a dive bar and doesn’t want to be anything more than that.           A portion of all Poison Girl proceeds of July 12, 2015 will benefit the Just Ask Foundation, a 501 (c)(3) dedicated to raising awareness of neurofibromatosis.just ask 18968977458_0d34816213_b

Posted in NF.

Over half of patients treated with selumetinib in phase I trial see reduction in plexiform neurofibromas.

New York, NY (PRWEB) June 08, 2015

As hundreds of the world’s leading NF experts convene in Monterey, California for the Children’s Tumor Foundation NF Conference, the largest gathering dedicated to neurofibromatosis (NF), it was announced today that for the first time in the history of the treatment of plexiform neurofibromas (PNs), over 50% of patients saw decreased volume in these inoperable tumors. In a presentation titled “The Promise of MEK: Therapeutics for NF1”, Brigitte C. Widemann, MD, of the National Cancer Institute (NCI), reported that response data in a phase I trial for children an Continue reading

Caught it in the nick of time…mechanic told me I was running on air!!! Damn! If it’s not one thing, it’s another. Pretty soon we’ll probably have to start thinking about flushing the oil and rotating the battery.image

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ABOUT NEUROFIBROMATOSIS (NF):*

• Neurofibromatosis, or NF, is a common, yet under- recognized genetic disorder that can cause tumors to grow on nerves throughout the body.

• NF is more prevalent than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined.

• NF occurs in one in every 3,000 people and affects millions worldwide.

• NF can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain.

• NF can arise in any family regardless of race or ethnic origin. Roughly half of all cases arise in families with no history of the disorder.

• NF has three distinct forms, NF1, NF2, and schwannomatosis.

• NF research is shedding new light on several forms of cancer, brain tumors, bone abnormalities and learning disabilities, ultimately benefiting the broader community in addition to those with NF.

• Progress toward ending NF is being made every day. Because of Children’s Tumor Foundation funding, there are over 40 on-going NF-specific clinical trials in existence, and 44 NF Clinics nationwide.

* Above information was provided by the Children’s Tumor Foundation (CTF.org)

I wish Reggie would stop pasting his head on my body. Fun at the CTF NF Forum! #endnfimage

Posted in NF.

Tracy Chapman once wrote, “I’ve seen and met angels wearing the disguise of ordinary people living ordinary lives.”

Ladies and gentlemen, meet the newest Just Ask Angel, Pamela Skaufel!

Pamela is moving to Australia and can’t take everything with her so she wants to donate the really nice things she’s decided not to ship.

More next weekend!

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Posted in NF.

I was over at Reggie’s with the Just Ask bus when D.R. came up to me and asked me about the bus. I told him what we did and he asked if he could donate but he only had a dollar. I said, “That’s perfect! For a dollar, I’ll even take your photo and put it on the website. So, D.R., here ya go!image image

 

1229315_1429717568.7833_updatesIt is with great sadness that I must inform you of the death of Byron Bibbs, Reggie’s brother and mechanic for the Just Ask World Tour bus. Byron suffered from COPD and apparently had an asthma attack at 1:30 am April 15 and died en route to the hospital via ambulance.

Services will be held this Saturday, April 25, 2015, at Merry Olive Baptist Church, 2804 McGowan and Delano, Houston Texas. Viewing at 10am. Service at 11am.

I have spoken with Byron’s family and they ask, in lieu of flowers, that donations be made to Byron’s favorite charity, the Just Ask Foundation.

In the early days of the Just Ask World Tour, Byron, a mechanic, proved to be a Godsend helping us fix the bus and making it road worthy to help us raise awareness of neurofibromatosis.

While Byron wasn’t a rich man, he never asked for anything in return for his services. I think he was very proud of his participation in the Just Ask World Tour and especially very proud of his brother, Reggie.

Because of Byron, the Just Ask World Tour lives on. And now, because of you and the Just Ask World Tour, the beautiful memory and legacy of Byron can live on forever.

Donations may be made online here at the GoFundMe Just Ask page at http://www.gofundme.com/justaskworldtour  or by check, to the following address:

Just Ask Foundation
c/o “Byron Bibbs Memorial Fund”
4918 Heatherbloom St.
Houston, TX 77045

The Bibbs Family and I thank You!

Posted in NF.