For a measly little donation, you can make all this go away! Well, except for me, I'm staying!
For a measly little donation, you can make all this go away! Well, except for me, I’m staying!

Only $315 to go! I honestly don’t want to cut my beard but if it raises money and attention for Neurofibromatosis awareness, I’m all for it….for the right price, that is! $500 is all it will take to see my face bare-ass naked! Five people have already ponied up. How about the rest of you? For an additional $1,000, I will shave my head. That is definitely something I do not want to do! Go to
http://www.gofundme.com/justaskworldtour to make a difference!

Thank you, Kathryn Tyler and Poison Girl for hosting our first ever Just Ask Fundraiser! Thank you to everyone who showed up and those who chose to donate via our gofundme account instead. A Grand Total of $1,500 was raised which will cover most of the expenses of our next world tour stop as soon as Reggie is up for the travel.

The Art Car Gang!
The Art Car Gang!
The ad gang arrived!
The ad gang arrived!

 

Thank you, again, everyone for a great afternoon at Poison Girl and a great opportunity to raise awareness of Neurofibromatosis to a new audience!

Robert Anthony Weston, Laura Wood and Lou Congelio at Poison Girl Lounge in Houston.
Robert Anthony Weston, Laura Wood and Lou Congelio at Poison Girl Lounge in Houston.
Our good friend Elizabeth Bertrand!
Our good friend Elizabeth Bertrand!

I was over at Reggie’s with the Just Ask bus when D.R. came up to me and asked me about the bus. I told him what we did and he asked if he could donate but he only had a dollar. I said, “That’s perfect! For a dollar, I’ll even take your photo and put it on the website. So, D.R., here ya go!image image

 


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To all who are liking the photos and video from the Houston Art Car Parade:

Please know that it wasn’t easy getting to this stage of the Just Ask World Tour. It took a lot of time, sweat and money to make this happen.

Reggie and I were happy to take care of the time and sweat and a lot of the money involved with raising awareness of neurofibromatosis.

But now, unfortunately we are falling short on the money part that will take us through the tour.

Screen Shot 2015-04-13 at 8.45.11 PMI am truly excited as we have proven that the Just Ask Bus will work as a great awareness vehicle, pardon the pun, through the views donations and Shares of news of our travels.

The $15,000 we have raised so far has helped to get the Just Ask bus in condition to travel the country. We have a motor we kind of trust, the exterior wrap is finished and looks great thanks to some special help from Matt Cline and Bayou Graphics, and a very functional but yet cool looking interior from the Upholstery Shop.

Now, quite honestly, we need to build up the GoFundMe account so that we can actually travel with the bus.

This upcoming trip to attend the CTF Forum in Scottsdale, Arizona has more than tapped us out on our expense account. Fo us to continue and post a schedule, we will need to raise some money, not a lot, but enough to get us to a few more locations.

We really want to be able to make it to Canada and see all of our friends in Vancouver, Calgary, Manitoba and, yes, Red Deer.

Any help you can provide, no matter how small will go a long way for Just Ask to fulfill it’s mission — to make life easier to all with neurofibromatosis by raising awareness, understanding and compassion for those challenged by it.

I can’t think of a better ambassador for NF patients than Reggie Bibbs.

He is doing extraordinary things way beyond even his comfort level to make it easier for the next NF patient to live life a little easier.

If you are unable to donate, and we totally understand, at least share this page with your friends in the event they would like to help.

I think we owe Reggie our unending love and affection but also the funds to help him do what he was born to do.

Please click below. Thanks you!

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imageWe needed to update the information on the back of the bus to give fellow travelers on the road an opportunity to contact us via Twitter. The new wrap will cover the entire rear section of the bus surrounding the back door. Can’t wait to get the bus back! If you ever need to wrap a company car or truck, I heartily recommend Bayou Graphix in Northwest Houston! They have treated us like their most important client which, of course, we are not but it is much appreciated!

I got the surprise of my life today. Well it shouldn’t have surprised me. Sugar Ray has always been a supporter of my work in JUST ASK.  Sugar Ray wrote me.  He said, he needs a new Just Ask t-shirt, so he can continue to wear my shirt and help spread awareness of neurofibromatosis when he travels to other countries.  This is great to have someone as famous as Sugar Ray Leonard to be involved with making a difference in the  JUST ASK! campaign.  Sugar Ray always ends his notes by calling me the Champ. Sugar Ray is the real Champ!

Thank you Sugar Ray.

The Group made it to Washington, DC last week which was a task in itself with  the winter storm hitting the east cost.  The storm was gone, but there was still a lot of snow.  Living in Houston, all my life. I have never seen that amount of snow in one place. Most of it was cleared away. It was enjoyable though.

The Neurofibromatosis Coalition team made all of the meetings. I believe all of the meetings went well. The amount requested  is $25 million. The same amount requested last year.  We were shaved down to 13 million.  The Department of Defense (DOD) could have easily awarded more funding for studies, if the funding was awarded.   The good news is there are studies that are waiting in line that could help.  Write your local and State Representatives and let them know how important funding is…it will save lives for millions of Americans by finding a cure for all types of cancer.

PHOTOS

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Texas has been lobbying since 1997 to ensure that NF research continues to make progress. Since that time, over 200 million has been contributed to NF research programs. Within the last few years, research funds have steadily been decreasing. However, today I am proud to announce that they are “back up!” The House Appropriations Committee just ruled that another 25 million will go towards the 2010 Department of Defense NF Research program. This is a tremendous victory since last years projects only collected 10 million. That’s a 250% increase!
Thanks to all of you for writing your Representatives, It worked! And thanks to Reggie Bibbs, Sandra and Emily Parker, Dr. Slopis and Dr. Moore for taking the time to personally visit Representative Sheila Jackson Lee.
HOWEVER – The 25 MILLION IS NOT SECURED – YET. We still need YOUR HELP to SECURE THESE FUNDS! Please email, or better yet, hand write and fax a personal letter asking that our Senate approve the House Appropriations proposal of 25 million towards NF research. Thanks again, together we are making a difference!

Senator John Cornyn FAX: (202) 228 – 2856
Compose an online letter to Sen. Cornyn
Senator Kay Bailey Hutchison FAX: (202) 224-0776
Compose an online letter to Sen. Hutchison

Reggie Bibbs is a highly inspirational man living in Houston, Texas. He was born with neurofibromatosis (NF), a genetic disease which causes him to develop tumors on his body. NF can be a subtle disease, but in Reggie’s case it has left him with a disfigured face. After years of public frustration, he launched a unique one-man campaign to call attention to this disease.

“I have neurofibromatosis. It’s a disorder that causes tumors to grow along my nervous system. In my case, it’s fairly disfiguring. When I would go out in public, people would stare or, worse, walk away. So I came up with an idea for a t-shirt and the rest, as they say, is history.”

With the help of a friend at a local advertising agency, Reggie Bibbs created a t-shirt that would invite people to come up and talk to him about his disorder. “I figured the more they knew about my disease, the more they would understand me.”

“When Reggie called me with the idea for a t-shirt that read, ‘Just Ask’, I literally had tears in my eyes, said long-time friend Lou Congelio, president of STANANDLOU Advertising. The idea was so simple and so powerful that I immediately offered him a position in the company.”

The t-shirt features on the front an abstract outline of Reggie’s face and, on the back, large type that simply says,’JUST ASK!’. Also included on the back is the url for Reggie’s website, www.reggiebibbs.com.

Today, Reggie is also on MySpace and Facebook and has an online store on his website. He’s been interviewed by Wikinews too.

Earlier this year, STANANDLOU and Reggie won 2 Gold ADDY Awards, one silver ADDY, and a Special Judges Award for Public Service Adversiting for their new “Just Ask” ads!

Reggie said, “I am thankful that the work here on the Just Ask campaign is getting noticed. More people will learn about NF as we keep pushing forward. Thank you all for supporting the site with your visits.”

On April 14, 2009, the Just Ask Foundation became exempt from Federal income tax under section 501(c)(3) of the Internal Revenue code.

To learn more about NF and Reggie, visit Reggie’s award-winning website and join him and his friends at the Neurofibromatosis Cafe.

Mari Garcia

Webmaster

Gillian Andersen Website

donate_onlineThank you for your interest in helping raise awareness for NF. With your help,  I hope to spread the word about neurofibromatosis through web, viral,  web-related resources, and personal appearances at events throughout the country

Unfortunately due to my not being rich, i.e. poor, I don’t have the financial resources to underwrite all the funding we need to meet my objectives. Thanks to Lou, I have been able to attend all of the functions you see in these photos courtesy of Lou.

I want to raise awareness of neurofibromatosis so that people affected as severely as myself can be accepted into society and lead a “normal” life. That’s why Lou and I and Matt and Geo and William and Shana go out together. When people see other people acting normal around something they don’t understand, they feel ok about it and figure there’s nothing wierd happening and they’re fine. Continue reading