Some friendsand and I went to see Kevin Nealon at the Improv last night. Click on the link, valt then photo. Check out the photos on his website, as well as the photos of my facebook, and flickr page.  I met Kevin a fews years ago in California, when visting my friend Scott. That is how I met Kevin. I’ve been friends with Kevin 3 years after that day. Kevin contact me to say he would be in Houston, and he would like for me to come see him. We did, and he really made me happy, as he did the same for my friends.

This is what Kevin did for me.  He wore my just ask shirt on stage. He gave me free tickets. He talk to me after the show, Was not in a rush to leave. He posed for photos with me. He collect lots of doodles for National Doodle Day.

Joan Rivers, Jane Leeves, Wendie Malick, Jon Lovitz, Valerie Bertinelli, Garry Shandling, Roseanne Barr, and of course Kevin Nealon.   And Kevin gave me this medallion. It was given to him by Brad Paisley. It reads Expect Great Things.  Kevin really made me happy, and Im thinkful for what he is doing for all of us that are affect by NF.

I went to OfficeMax for office supplies today.  As Lou and I shopped, Deborah asked if we needed help with anything. She helped with finding the ink for my printer.

When it was time to check out, Deborah, was there again with a big smile. I had a chance to mention Just Ask, but didn’t have any cards with me.  Deborah, was nice enough to allow us to take a photo of her.

Thank you Deborah, for your help, and for being so kind! Office Max should be very proud of you!

I got the surprise of my life today. Well it shouldn’t have surprised me. Sugar Ray has always been a supporter of my work in JUST ASK.  Sugar Ray wrote me.  He said, he needs a new Just Ask t-shirt, so he can continue to wear my shirt and help spread awareness of neurofibromatosis when he travels to other countries.  This is great to have someone as famous as Sugar Ray Leonard to be involved with making a difference in the  JUST ASK! campaign.  Sugar Ray always ends his notes by calling me the Champ. Sugar Ray is the real Champ!

Thank you Sugar Ray.

Recently, I shipped a Just Ask t-shirt to Gabriele, a new friend, who lives in Germany. I want to share her message,  But first I want to say, I am impressed that someone from as far as away as Germany took time to write such a nice message and also order a JUST ASK T-SHIRT.  Now!  that is a cool feeling.  Someone supporting what I do to bring awareness to nf.  Gabriele writes…..

“Hello Reggie, I´ve written you a note just a few minutes ago- but before I got the chance to finish it, I hit the “submit-button” by accident. To make shure you receive it all, I´ll start all over again. I´ ve seen a video with you and Oprah on you tube. I found it very touching and think you are very courageous. I was born with NF too and since the right side of my face was damaged I had operations since I was 3 years old. Now I am almost 45 and ´ve been leading a normal live. My parents gave me a lot of courage on my way- thats why NF couldn´t stop me from doing anything. I have to admit that there was no chance for me to become a model but I am a few inches to short anyway 😉 I wish there where more people like you- letting the public know that a face isn´t a vital organ. That people like us have a brain and a heart and   are liveable and loveable beings. One of my reasons to write you was that I wanted to order a “Just Ask” T-shirt. In the meantime I´ve found the link on your homepage. The other reason was that I wanted to tell you “Keep going” … well- there is still so much I would like to say, but I better write a book… A book? Why not…. I hope you had a nice x-mas and want to wish you a happy new year Gaby, from Munich Germany

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It is that time of year again. The Texas NF Foundation, is making it possible for nearly 200 persons to have a great weekend at Camp For All. This weekend will be our yearly camp for persons with nf, along with family and friends. The one time most of us get to see each other. I’m looking forward to horse back riding, Zip line, which I hear is lots of fun. Fishing, petting zoo, and Lots of talking with new and old friends. Also looking forward to sharing with you photos to all who can’t make it to camp this year. Let’s talk about camp this week. What do you look forward to this weekend at Camp For All.

3645979408_c27f7671a4_b3539584406_acd06ffe80_bCHAMPIONSHIP TITLE BOUT: AUGUST 15, 2009 – Psych Ward Sirens vs. Bayou City Bosse$

This Saturday, August 15th, The Houston Roller Derby will have the battle of the champions. Psych Ward Sirens vs Bayou City Bosses. Both are super great teams. Its going to be a great bout. Can’t wait. Also I looking forward to seeing the Burlesque Brawlers. I’m a fan of them all. Hope everyone can come out!

This is Lou talking: This may be your last chance to see incredible roller derby action in Houston this year! And this Saturday, is going to be a match for the ages as Mistilla the Killa, jammer for the Psych Ward Sirens takes on Death by Chocolate, of  the Bayou City Bosses!!!!

August 15th at KICKS Indoor!
Bout 1: Burlesque Brawlers host the Spindletop Roller Girls
Bout 2: Psych Ward Sirens vs Bayou City Bosse$

Doors Open at 6PM; Whistle Blows at 7PM
Get there early to get a good seat!

Charity: Hope Stone, Inc
Halftime: Stamen
After Party: 6th Street Sports Bar and Grill
2701 White Oak, Houston, Texas 77007
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Megan is one of my oldest, dearest friends!

She has NF also but her tumors are on the inside. I met Megan when we shot a TV commercial promoting awareness of neurofibromatosis back in 1989. She was just a little thing then as you can tell from the photo above. She was just 3 years old!

3714925710_d8415e32cfShe’s 23 years old now and is so beautiful and so nice!3714720063_c1869c12a2

We found each other on Facebook after all these years and decided to get together again so we met at one of my favorite restaurants, Tilas, in River Oaks.

What a great day!

We just talked and talked and talked about the old days, 3714066819_141d9976fcwhat each of us have been up to, and where we want to go in our lives. I told her about the “Just Ask! Foundation” and she wants to be our first Ambassador!

I can’t think of a better person to represent the Just Ask Foundation than Megan!

picture-1Another nite at Lou’s.  Last night steak nite,  became Music and Pizza nite.  It was quite different from our regular Thursday nite.  All of the guy’s though it would be a good idea to work on our  music and eat pizza.  Mark Sansoucy new to the Reggie Bibbs Orchestra, alone with the regulars 2William Hughes,Matt Jones, and Supporters Geo Austin  and Lou Congelio.  Our friend  wrote a song that  we loved. Mark was  inspired by JUST ASK, to write a song. The name of the song?   JUST ASK. You will enjoy it as much as I do, I’m sure of that. We hope to have the photos and videos  on the blog soon.  I would love to hear your thoughts on the idea. And I know I can look forward to terrific comments of the music.

Download Lyrics to “Just Ask!”

Watch the video.

Just Ask (A Song for Reggie Bibbs)
Music and Lyrics by Mark Sansoucy

Just ask
Just ask
And I’ll tell you all you want to know
Just ask
Just ask
All you have to do is say Hello

I see people staring at me in restaurants
When I’m hanging out with my good friends
Yes, they see the way I look
And they get a little spooked
But that’s because they don’t know what I have

So, just ask
Just ask
And I’ll tell you all you want to know
Just ask
Just ask
All you have to do is say Hello

Pull your chair on up and come on over
I don’t bite, but sometimes my friends do.
Yes, we like to clown around
When we hit the town
But just like you they stepped on up and asked

So, just ask
Just ask
And I’ll tell you all you want to know
Just ask
Just ask
All you have to do is say Hello

Living a life like mine it isn’t easy
Sometimes I don’t want to leave my house
But I can’t live in fear
For those who hold me dear
Cause they know it’s what’s inside that really counts

So, just ask
Just ask
And I’ll tell you all you want to know
Just ask
Just ask
All you have to do is say Hello
All you have to do is say Hello

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wcbbqc_wide.jpgWell, tomorrow, Feb. 28, 2008, kicks off the 35th Annual Houston Livestock Show & Rodeo with the World’s Championship Bar-B-Que Contest and I’m going to be there enjoying my fair share!

Yes, I plan to be there eating all the que I can stand. I hope to get lots of photos to share on my blog and flickr page. It’s going to be a fun night.

Anyone else going to the cook off or Rodeo? Continue reading