Thank you, Kathryn Tyler and Poison Girl for hosting our first ever Just Ask Fundraiser! Thank you to everyone who showed up and those who chose to donate via our gofundme account instead. A Grand Total of $1,500 was raised which will cover most of the expenses of our next world tour stop as soon as Reggie is up for the travel.
Thank you, again, everyone for a great afternoon at Poison Girl and a great opportunity to raise awareness of Neurofibromatosis to a new audience!
Last week, I had speaking engagements in Dallas and Forth Worth, Texas, thanks to my old friend Bob Hopkins, who I met when he was Executive Director of The Texas Neurofibromatosis Foundation. Bob Hopkins is now teaching for Tarrant County College.
Before I go any further, I want to thank every student for taking the time to come hear me speak. It would have not been a success without their involvement. Thank you all, for your time and kindness.
At Eastfield College, my friend Patrick O’Dooley emceed the event in front of 50 students. He stood beside me during Q and A, he and I fielding questions that the students had.
I met Patrick during one of his motivational classes a few years ago. Patrick was one of the first people I have met who was instrumental in making me feel good about myself and making every day a TREMENDOUS day! I’m thankful Patrick was there for me!
In attendance at the speaking engagements were two professors of Sociology and Environmental Sciences, from Collin College. I spoke UP CLOSE and PERSONAL. The President of Tarrant County South College, addressed the students and stayed for my speech there.
By my sixth speech in two days, I’m told I was a pro and that my speaking abilities were great. Bob said I had every class in the palm of my hands!: > ) Bob said he was proud of me. That’s a tremendous compliment coming from someone who speaks as well as Bob Hopkins.
I got the surprise of my life today. Well it shouldn’t have surprised me. Sugar Ray has always been a supporter of my work in JUST ASK. Sugar Ray wrote me. He said, he needs a new Just Ask t-shirt, so he can continue to wear my shirt and help spread awareness of neurofibromatosis when he travels to other countries. This is great to have someone as famous as Sugar Ray Leonard to be involved with making a difference in the JUST ASK! campaign. Sugar Ray always ends his notes by calling me the Champ. Sugar Ray is the real Champ!
From: Ed Port <firstname.lastname@example.org>
Date: December 27, 2008 2:56:15 AM CST
Subject: Hello Reggie from Ed Port
Thank you for the e-mail MIke forward it to me. How did yo hear about my story? I fist saw you on the O about a year ago when I was flipping thou the TV chs Mike has been trying to help me get my story out. I ws chatting with friend today on yahoo that lives in Romania who said he would put my website on his blog to help to get the word out and to help rasie funds.
I would like your imput on anything that would help make the website better. I wike your store very much it would great to speak to you
This weekend I got the shock and surprise of my life! I was going through my emails looking for a phone number when I came across an unopened email dated November 14! It was from my new friend Kevin Nealon, from Saturday Night Live, who I had just met the night before.
I have no idea how I missed this very important email but I guess it was because I was traveling and wasn’t able to check email till I got back home. Anyway, here is the very nice email that Kevin wrote plus the photos he sent.
So great meeting you last night, and your friends! I’m so
flattered that you guys came to my show. Oh, loved your website, too!!
Susan and I loved checking out each category. Great videos and pics,
great coverage on the news stations as well. We’re so impressed with
your courage and your raising awareness of NF. What a difference you
are making! Please keep us updated on the foundation.
Attached are a few pictures of me wearing your shirt. Btw, it
fits me like a glove. I have a new cause now. 🙂
Kevin and Susan
Most of you have seen the photos from my trip to Manhattan Beach California, when I went to visit my friend, Scott. Well, on the visit, Scott suggested we go see Kevin Nealon at the Comedy club. That is where it all happened. After the show Kevin came over to meet me. It was there when I shared with Kevin and his Wife Susan about NF. What a nice couple they both are. So kind and understanding to NF, and the JUST ASK campaign. I’m proud that Kevin is wearing one of my JUST ASK! T-shirts. You never know where you may see one next. Thank you Kevin and Susan for your support. Hope to see you soon.
I spoke with Mari Garcia administrator of Gillian Anderson’s Official Web Site, I was asked sometime ago to help out and to contribute a doodle for NF, Inc’s Second National Doodle Day Auction. I was happy to post a blog and do what I can to be of help. Please check out the links and see your favorite Actors and actress and others who have support the fight against NF.
The auction will start on May 8 on eBay. So far there are two pages and more doodles will be added as they come in. Be sure and blog your favorite doodle.
NF, Inc. is raising money for neurofibromatosis through their annual National Doodle Day! As part of NF Awareness month, celebrity doodles will be available for auction on eBay.
These doodles have a very important aim: the funds they raise will benefit NF, Inc., an organization dedicated to providing support to individuals and families affected by neurofibromatosis (NF).
Neurofibromatosis is a genetic disorder that affects one in every 2,500 births. NF is more common than Cystic Fibrosis, Muscular Dystrophy and Huntington’s Disease combined. Funds raised from the Doodle Day auction will go to support education, advocacy, coalitions, and research for treatments and a cure.
To learn more about NF, please visit www.nfinc.org.
For more information about National Doodle Day, contact email email@example.com
On Valentine’s Day, I went to Comcast. I had a problem with my cable box and I took it back to Comcast. A customer service worker waited on me. Denise was very nice and helped me with my problem. It was then that she told me how happy she was to see me. And that she had seen me on TV. All of the customer service people were just as nice as Denise. I had to go back today so I asked if I could take their photo to put on the blog as a way to say thank you for being so nice. It’s nice to know that a company as big as Comcast can have employees as nice and personable as Denise and her friends. Please, if are in you the area, show some love to the great job the ladies are doing at the Bellaire location. Thank you Denise. And of course Phelisia, Patricia, and Jennifer. What a Sweet Heart of a Day for me!
WELCOME BACK, JERRY TURNER!
I made it!!!!For everyone who has never experienced a 17 hour non-stop flight……Don’t do it!!! I thought it would be worth it not to stop in Europe on my way back, but it’s not. At some point in there you need a break. With about 4 hours to go in the flight I was in absolute misery. I’ll give you a buzz tommorrow.
Last night, Lou and I attended a special committee meeting to help plan and execute a fund-raiser to help those with NF in the Houston area. The fund-raiser will be held on Tuesday, April 22, 2008, at the Hotel Derek, in the Galleria area of Houston.
I am proud to be Honorary Chairman of this important event and I hope all of my friends can join me in this very worthy cause! Below is a letter from our Houston Highlights Chairman, Ishma Blackwell, detailing the event. It’s going to be a lot of fun!
Today, Lou and I had a meeting about the blog, website and future plans. Everything went Terrific!
While at STANANDLOU, we took a few pictures after the meeting. I’m looking forward to the exciting things we have planned for the website. Of course, I came up with most of the ideas so don’t give Lou all the credit.
Anyway, I will be heavily involved helping the Texas Neurofibromatosis Foundation with their search for a cure for NF. I want to help with their events for 2008. I know I will go to the NF camp this summer.
If you are a regular on my blog, it might be a good idea to start spreading the word about the blog to your friends that have NF. The blog is a good place to find out about upcoming events and also just to share information and have fun, too!
I think people have fun here even if they don’t have NF. Just ask Shelley, Arthur and Lou. Never mind, don’t ask Lou!!!
Dear friends, while I was up in Dallas last week helping with the Denise Terrill Golf Classic benefitting NF, I got to talking with a few members of the Texas NF Foundation and we think it’s time that Houston had their own NF support group again.
Back in the 90’s, the Texas NF Foundation actually had an office here in Houston to help those in the area afficted by NF to get the medical help they needed. And just as important. support in their daily lives. Continue reading →