We needed to update the information on the back of the bus to give fellow travelers on the road an opportunity to contact us via Twitter. The new wrap will cover the entire rear section of the bus surrounding the back door. Can’t wait to get the bus back! If you ever need to wrap a company car or truck, I heartily recommend Bayou Graphix in Northwest Houston! They have treated us like their most important client which, of course, we are not but it is much appreciated!
Reggie Bibbs and I are excited to kick-off the Just Ask World Tour at the CTF NF Forum in Scottsdale, April 17! Come join us we finally get to meet all the great CTF people in Arizona!
April 17-19, 2015: Scottsdale, AZ
The Children’s Tumor Foundation’s NF Forum is a national patient and family gathering hosted annually in different cities across the United States. The NF Forum allows those living with NF, and their families, to connect, support, and learn from each other while attending seminars on relevant topics pertaining to neurofibromatosis. The 2015 NF Forum features: NF clinical and research updates, sessions on the personal and social challenges of living with NF, interactive Q & A sessions with NF specialists, fun activities, meals, social time with friends and family, and much more!
The Children’s Tumor Foundation, mindful of the high cost of transportation and family expenses, has underwritten a significant portion of the registration in order to keep the registration costs as low as possible.
Adult (Age 21+) $99 (USD)
Youth (Ages 17-20) $75 (USD)
Child (Ages 0-16) $50 for first child ($20 for each sibling)
Sat. Dinner Guest for non-registered attendees $100 (USD)
On-Site Registration: April 17-18, 2015 $150 (USD)
If you have any questions, concerns or need further assistance please email Traceann Rose at firstname.lastname@example.org.
The Just Ask team had a great day at Second Baptist Church. We met a lot of people in Reggie W. Bibbs bible study group but were very impressed by how friendly everybody was. I felt like we were in the middle of a Reggie Bibbs Fan Club convention. We couldn’t take two steps without someone coming up and saying hi. But we were blown away when Dr. Young recognized Reggie from the pulpit and proceeded to tell the congregation that Reggie was his hero for everything he is doing to raise awareness of NF.
I went to OfficeMax for office supplies today. As Lou and I shopped, Deborah asked if we needed help with anything. She helped with finding the ink for my printer.
When it was time to check out, Deborah, was there again with a big smile. I had a chance to mention Just Ask, but didn’t have any cards with me. Deborah, was nice enough to allow us to take a photo of her.
Thank you Deborah, for your help, and for being so kind! Office Max should be very proud of you!
12:16am (CST) 5/8/09 Late tired and going to bed. Tomorrow Matt and I will hit the radio waves.
Matt owns a few radio stations and he wants me to go on the radio with him. I also will be meeting with Gillian Andersons mom tomorrow. She Told Debbi she wanted to take me to lunch. Debbi said everyone wants to meet
you. We are making a difference. I will check back if you write me back. I have a computer in the room. This is me most awesome home I have seen. I will have photos so don’t worry.
10:39 am (CST) 5/10/09 – Lunch with Rosemary Anderson. In the photo of Rosemary and me, you will see Grace, Debbie and Matt’s daughter. Rosemary said it was ok to post our picture. She is a wonderful lady.
Just talked with Reggie and he had a phenomenal time at the book signing event last night thanks to Greg Gorman. Reggie said he met a lot of great people and took a lot of photos. He’s going to try to email me one or two to put on the site until he gets back. PHOTOS
In any event, if you were at the party on Wednesday, please leave a comment so we can live vicariously through Reggie’s amazing life!
Top photo: Me and photographer,
Middle: Me, Christopher Atkins (Blue Lagoon) and Scott Dickson
Lower: Me and Audrey Wells (Director: Under the Tuscan Sun).
Tonight was another great night at the Houston Livestock Show and Rodeo!
I started out with the live stock show and all of the other fun things. Oh, my God! Did I enjoy the FOOD. Everything was to die for. Deep fried Oreos, steak burgers, foot-long sausage sandwiches, giant cinnamon rolls with lots of icing. But don’t take my word for it, check out the photos for yourself.
I went to the Rodeo to see Martina McBride. She was great and the music was terrific! She really sang her heart out. She sang all of her best songs and the crowd loved it. Of course, so did I. Martina loves Houston and she looks forward to her show here every year.
I know why she loves Houston. I feel it every time I go out. So many people here have been so kind to me. I’m thankful to be in a great city like Houston. It made me feel so good when people I never met came up to be today and spoke kind words to me. You will see them in my photos. People like that are heroes to me!
I spoke with Mari Garcia administrator of Gillian Anderson’s Official Web Site, I was asked sometime ago to help out and to contribute a doodle for NF, Inc’s Second National Doodle Day Auction. I was happy to post a blog and do what I can to be of help. Please check out the links and see your favorite Actors and actress and others who have support the fight against NF.
The auction will start on May 8 on eBay. So far there are two pages and more doodles will be added as they come in. Be sure and blog your favorite doodle.
NF, Inc. is raising money for neurofibromatosis through their annual National Doodle Day! As part of NF Awareness month, celebrity doodles will be available for auction on eBay.
Neurofibromatosis is a genetic disorder that affects one in every 2,500 births. NF is more common than Cystic Fibrosis, Muscular Dystrophy and Huntington’s Disease combined. Funds raised from the Doodle Day auction will go to support education, advocacy, coalitions, and research for treatments and a cure.
To learn more about NF, please visit www.nfinc.org.
For more information about National Doodle Day, contact email email@example.com