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The Winner!
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The Undies!
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The Start!

The Just Ask World Tour descended on Downtown Houston today to witness the first ever Cupid’s Undies Run in the Bayou City!

VIDEO OF THE START

Reggie and I had no idea what to expect but what we witnessed just blew us away!

Try to imagine 350 half-naked runners taking to the streets of Houston in celebration of their fundraising for the Children’s Tumor Foundation.

350 of the nicest, most kind-hearted people in the world who not only ran in their undies to raise awareness of and money for neurofibromatosis, the same disorder that Reggie has. Money raised during the Run will help fund clinical trials, discover better treatments and hopefully find a cure!

CHANNEL 13 PHOTOS

Reggie and I had the pleasure of hanging our with the organizers of Houston’s first race and, I got to tell you, we had a blast!

VIDEO OF THE AWARDS

I’ll write more later but, right now, I’m more interested in uploading the photos and videos to Reggie’s Flickr account. Watch for the links here!

PHOTOS

HOUSTON CHRONICLE PHOTOS

http://m.chron.com/entertainment/slideshow/Cupid-s-Undies-Run-Houston-2015-103274/photo-7526613.php

 

Our new ad for the Just Ask World Tour campaign.
Our new ad for the Just Ask World Tour campaign.

In preparation for our Just Ask World Tour promoting awareness of neurofibromatosis, we are preparing special ads that we will send to the newspapers of the cities we are about to visit to see if they would run them as a Public Service Announcement (meaning for FREE!) while we are in town or afterward as a reminder or before as a teaser.

We have a bunch of really cool headlines but this is, by far, my favorite!

If anyone would like copies of the ads to try to get your local newspapers to run them, I would be happy to supply the files. Like Reggie says, Just Ask!

 

For more medical type definition of neurofibromatosis, I like the Mayo Clinic description best:http://www.mayoclinic.org/diseases-conditions/neurofibromatosis/basics/definition/con-20027728

 

 

 

 

 

 

 

Santa Bibbs
Santa Bibbs

As 2014 draws to a close, it is not only appropriate but necessary to thank the thousands of friends and supporters that have made the Just Ask Foundation a leader in promoting awareness of neurofibromatosis.

We believe that the more people who know about neurofibromatosis and its many manifestations, the easier it will be for those challenged by NF to enjoy life more fully — no longer encumbered by the prejudices of those who don’t understand.

We intend to continue educating people and reminding them that it doesn’t matter what we look like on the outside, that we are all the same on the inside with the same thoughts, desires, feelings, wants and dreams.

From humble beginnings…

We, at the Just Ask Foundation, are very proud of what we have accomplished to date but, we realize, there is so much more to do.

This past year, we were the recipient of a 1991 GMC school bus that would allow our dreams of a Just Ask World Tour to begin. Many thanks to Tracy Boulware at Deer Lake Lodge & Spa in Montgomery, Texas for their most generous gift and kind thoughts!

Graphic designer, Kim White, of Open Road Creative and our friends at Bayou Graphix helped us incredibly with their expertise, advice and “special” pricing that enabled our bus to become a traveling billboard, helping us reach thousands of people every day just by the mere appearance of the bus at gas stations, restaurants,special events and just driving down the road!

To great things!!

We are very, very proud of the finished result!

in 2014, we started an online fundraising page at GoFundMe which has truly been a blessing. We have already received over $14,000 in donations of our $120,000 goal which has allowed us to make much needed repairs on our Just Ask bus and to visit various cities around Texas!

Hopefully, through continued donations and sponsorships, we’ll be able to travel more extensively throughout the United States and Canada spreading the word about NF.

I would be remiss not to mention the countless individuals behind the scenes that have helped us in so many different ways — spiritually, physically and financially that helped us get to where we are today.

Carolyn Farb, Reggie Bibbs, Greg Gorman

First, and foremost, much of what has happened in Reggie’s life would not have been possible without the kindness, thoughtfulness and generosity of Houston socialite Dr. Carolyn Farb!

Carolyn chaired the first major fundraiser for neurofibromatosis back in 1992 and asked Reggie Bibbs to be featured in the now famous fundraiser, “My Heart Belongs to Daddy” held on the ice rink at Houston’s famed Galleria.

Reggie and the Ladies

 

 

Later, Carolyn introduced Reggie to Los Angeles photographer, Greg Gorman, who to this day remains one of Reggie’s closest friends. Greg gave Reggie the money to buy his first car and on many occasions has flown Reggie out to his home in Hollywood where he invites many of his showbiz friends to meet Reggie and help promote awareness of his disorder.

Reggie and Beyonce. Reggie is the reason Jay-Z had to put a ring on it…

The names of these celebrities would fill a Who’s Who of Celebrities but I will try to name a few: Sharon Stone, Catherine Bach, Shari Belafonte, Quincy Jones, Sugar Ray Leonard, Ricki Lake, Beyonce, Chris Atkins, Rick Moors of The Bonedaddys, and many, many more!

Colin Hay, lead singer and song writer of the music group, “Men at Work”, has been a huge supporter of Reggie and Just Ask the past four years. Besides comp tickets at the door for the Just Ask team, Colin dedicated his hit song, “Waiting for My Real Life to Begin”, at his last performance in Houston. and granted Just Ask exclusive use of the song in perpetuity. Click above to view the song recorded at the Dosey Doe Concert venue in Houston, Texas.

Play ball!!

William Hughes and Matt Jones of the Just Ask Foundation edited their own version of the song using photos from Reggie’s extensive Flickr account. Click here to witness Reggie reaching out to people and raising awareness of NF wherever he goes.

Kevin Nealon

Extra special thanks go to Kevin Nealon, formerly of “Saturday Nite Live” for being an incredible friend to Reggie on and off the stage through VIP tickets, texts, emails, phone calls and linking to Reggie’s website on his own page. Kevin is, by far, one of the nicest people you will ever meet!

Other celebrities and individuals who have gone out of their way to support Reggie and Just Ask include Kenny Rogers, The Neville Brothers, Cirque du Soleil, former Texas Governor, George W Bush, Fort Worth Mayor Mike Moncrief, Dr. Vic Riccardi, Dr. Don Baxter, Dr. John Slopis and Bart Moore of M.D. Anderson Cancer Center, Houston Mayor Bill White, Dallas Cowboy Coach Tom Landry, Houston Roller Derby, Robin Leach, musician Charlie Sexton and many, many, many more!

Reggie and the Psych Ward Sirens form Houston Roller Derby

We are so appreciative of all the help and support we have received to get to where we are today but, quite honestly, we haven’t even begun to accomplish what we feel we must do to make a difference.

Once again, we ask for your generous help and support to allow the Just Ask Foundation to continue our mission to raise awareness of NF so that EVERY human being with NF has a chance to live their life with love, understanding and compassion.

Thank you for all you do!

As Reggie says at the ends of all of his emails, MAKE IT A TREMENDOUS DAY!

Lou talking to Reggie’s hand.

Lou Congelio
Reggie’s Friend
Executive Director, Just Ask Foundation


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Of course, the Just Ask foundation is always accepting donations from our personal community via Go Fund Me, which has already raised over $14,000.Please feel free to connect us via Facebook, Twitter, and thehttp://www.justaskfoundation.org for updates on the Just Ask World Tour!

Some friendsand and I went to see Kevin Nealon at the Improv last night. Click on the link, valt then photo. Check out the photos on his website, as well as the photos of my facebook, and flickr page.  I met Kevin a fews years ago in California, when visting my friend Scott. That is how I met Kevin. I’ve been friends with Kevin 3 years after that day. Kevin contact me to say he would be in Houston, and he would like for me to come see him. We did, and he really made me happy, as he did the same for my friends.

This is what Kevin did for me.  He wore my just ask shirt on stage. He gave me free tickets. He talk to me after the show, Was not in a rush to leave. He posed for photos with me. He collect lots of doodles for National Doodle Day.

Joan Rivers, Jane Leeves, Wendie Malick, Jon Lovitz, Valerie Bertinelli, Garry Shandling, Roseanne Barr, and of course Kevin Nealon.   And Kevin gave me this medallion. It was given to him by Brad Paisley. It reads Expect Great Things.  Kevin really made me happy, and Im thinkful for what he is doing for all of us that are affect by NF.

Hey Friends, I need a little patience from my friends and new customers… as you may know there’s been a large increase in Shirt sales due to the TLC airing of my visit to Salt Lake City  recently.  I’m not complaining, and I am very pleased with the increased sales, but now I have to work harder and find more willing friends to take me to the Post Office.  I’m Just Asking… for a little understanding in the delay of your shirt delivery.
I am mailing them as quickly as I can get them to the post office.  My last shipment went out October 18th. All are mailed at first class parcel.  Please allow 7 to 14 days after your order is place.
ps. I have decided to not Iron them, it speeds up the process, and there’s less damage to the shirts.  (that was more humor..)

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OCT 16, 2009

HEY REGGIE HOW ARE THINGS GOING? I’M IN LONDON HEADING BACK HOME AND I FORGOT TO TELL YOU THAT IT IS MY HONOR TO WEAR MY DEAR FRIEND’S T SHIRT! I LOVE YA MAN BUT YOU NEED TO SEND ME ANOTHER T SHIRT TO SPREAD THE WORD ABOUT YOUR CAUSE CHAMP! ALL THE BEST! SUGAR RAY LEONARD

Guess who is wearing one of my JUST ASK! t-shirts?

You probably already know from the photo you see here. Yes my friend Sugar Ray Leonard. I was so happy when Ray ordered one of my t-shirts. He told me he would be proud to send me a picture of himself wearing my shirt. He kept his word and I have the pictures to prove it. I have known Ray for a long time and he is always supporting my in everything I have done. Imagine someone as famous as him supporting my efforts in NF awareness. He’ll always be the “Champ” in my eyes!

Reggie Bibbs is a highly inspirational man living in Houston, Texas. He was born with neurofibromatosis (NF), a genetic disease which causes him to develop tumors on his body. NF can be a subtle disease, but in Reggie’s case it has left him with a disfigured face. After years of public frustration, he launched a unique one-man campaign to call attention to this disease.

“I have neurofibromatosis. It’s a disorder that causes tumors to grow along my nervous system. In my case, it’s fairly disfiguring. When I would go out in public, people would stare or, worse, walk away. So I came up with an idea for a t-shirt and the rest, as they say, is history.”

With the help of a friend at a local advertising agency, Reggie Bibbs created a t-shirt that would invite people to come up and talk to him about his disorder. “I figured the more they knew about my disease, the more they would understand me.”

“When Reggie called me with the idea for a t-shirt that read, ‘Just Ask’, I literally had tears in my eyes, said long-time friend Lou Congelio, president of STANANDLOU Advertising. The idea was so simple and so powerful that I immediately offered him a position in the company.”

The t-shirt features on the front an abstract outline of Reggie’s face and, on the back, large type that simply says,’JUST ASK!’. Also included on the back is the url for Reggie’s website, www.reggiebibbs.com.

Today, Reggie is also on MySpace and Facebook and has an online store on his website. He’s been interviewed by Wikinews too.

Earlier this year, STANANDLOU and Reggie won 2 Gold ADDY Awards, one silver ADDY, and a Special Judges Award for Public Service Adversiting for their new “Just Ask” ads!

Reggie said, “I am thankful that the work here on the Just Ask campaign is getting noticed. More people will learn about NF as we keep pushing forward. Thank you all for supporting the site with your visits.”

On April 14, 2009, the Just Ask Foundation became exempt from Federal income tax under section 501(c)(3) of the Internal Revenue code.

To learn more about NF and Reggie, visit Reggie’s award-winning website and join him and his friends at the Neurofibromatosis Cafe.

Mari Garcia

Webmaster

Gillian Andersen Website

3090342427_26cb9dd5b3_b3090342561_eb020396fa_bThis weekend I got the shock and surprise of my life! I was going through my emails looking for a phone number when I came across an unopened email dated November 14! It was from my new friend Kevin Nealon, from Saturday Night Live, who I had just met the night before.

I have no idea how I missed this very important email but I guess it was because I was traveling and wasn’t able to check email till I got back home. Anyway, here is the very nice email that Kevin wrote plus the photos he sent.

Hey Reggie,
So great meeting you last night, and your friends! I’m so
flattered that you guys came to my show. Oh, loved your website, too!!
Susan and I loved checking out each category. Great videos and pics,
great coverage on the news stations as well. We’re so impressed with
your courage and your raising awareness of NF. What a difference you
are making! Please keep us updated on the foundation.

Attached are a few pictures of me wearing your shirt. Btw, it
fits me like a glove. I have a new cause now. 🙂

Best wishes,
Kevin and Susan

Most of you have seen the photos from my trip to Manhattan Beach California, when I went to visit my friend, Scott. Well, on the visit, Scott suggested we go see Kevin Nealon at the Comedy club. That is where it all happened. After the show Kevin came over to meet me. It was there when I shared with Kevin and his Wife Susan about NF. What a nice couple they both are. So kind and understanding to NF, and the JUST ASK campaign. I’m proud that Kevin is wearing one of my JUST ASK! T-shirts. You never know where you may see one next. Thank you Kevin and Susan for your support. Hope to see you soon.

thanksgiving_1To all my friends:

I have so many things to be thankful for.

This blog is my favorite because I get to thank all of you for your support. I wrote this down and wanted to say it at our Board Meeting for JUST ASK! I didn’t get to; I’m saying everything now.

After my website went live, everything has changed for me in great ways. Lou doesn’t want to take credit for what has happened here. If it wasn’t for Lou, there would be no Website and Blog, Live Stock Show and Rodeo, Baseball Games at Minute Maid Park, Football at Reliant Stadium, meeting The Neville Brothers, Mayor Bill White, George Clinton, Kevin Nealon, the Houston International Festival, the Texas Renaissance Festival, The Houston Roller Derby Bouts and the NF Fund Raiser. And I wouldn’t have met the hundreds of wonderful people along the way.

I’m thankful for my friend William Hughes for helping with the website and all things having to do with my computer. Matt Jones for all of his help with the Just Ask Foundation. Michelle Reed for helping with her generous donation to set up the Just Ask Foundation. And of course William, Matt and John Person for helping me “refine” my musical talent at our “Jam Nights” at Lou’s.

Thanks to all of my friends who helped with Doodle Day by donating doodles. Matt Loftiss, The Art Guys, Aaron Long, Andy Dearwater, Kim White, Kate Wiggins, Matt Walsh, Jordon Walker, Elena Congelio, Rhea Diaz, Former Senator and now Fort Worth Mayor, Mike Moncrief, and Sugar Ray Leonard.

Also, thank you to my friends and famous photographers Arthur Meyersen and Greg Gorman. Greg was nice enough to photograph we when I was in Los Angeles a few weeks ago visiting my friend Scott Dicksonand his family. The Dickson family treated me really well. Thank you Arthur Meyersen for helping my family after Hurricane Ike.

I will always be forever grateful and appreciative of the warmth and friendship extended to me from all my friends  at the Houston Roller Derby: Dementia, Mistilla the Killa, Jeckill & Heidi, Carmen Geddit, Fro-ro-cious and the one and only David Beebe, The Colonel!You guys rock!

How could I forget Christi Myersfrom ABC KTRK and Damali Keith from FOX 26 for their wonderful news stories. Laurie Seltzerfrom MNI Networks for the full page ads in Time, Newsweek and US News & World Report. Henry De La Garza and Jorge Moya for helping get the word out about “Just Ask!”

One of the best things to ever happen to me happened this year when my friends, Connie and Jaen Lawrence, found the perfect dog and companion for me. “Shiner”is without a doubt the best dog in the world!!! Connie and Jaen also provided me with a new mahogany desk, computers, printers and office supplies so I could move into STANANDLOU and start the “Just Ask! Foundation. I am so blessed to know these two wonderful people!

I think it would be nice if we took a minute here on this blog and said thanks for all the wonderful people and events that we have experienced this past year.

I know we all have something we are thankful for.

I feel that we have lots of promising things ahead for all who suffer with NF. Let’s give thanks to the doctors, nurses and researchers for all they do for NF research and treatment. Especially you, Dr. RiccardiDr. Bart Moore and you, Dr. John Slopis!

Last, but not least, I am thankful for all the wonderful, caring people that I have met on this blog: Emily, Patricia, Brian, Shelley, John P, Meredyth, Everette, David Linn, Susan, Cindy, Francis from France, Fran, Laura, Connie, Sugar Ray Leonard, Scott, Colleen, Allyson, Jerry, David, Tanya, Escarlata, Ne-Ne’s mom, Bob, Rick from England, Vera, Rie, Jaen, Rick, Michael, Bea, John K and over 150,000 visitors who have come to the site.

Thanks also to PJ at PJ’s Sports Bar for  Thursdays evenings for our group on Steak Night. Always a fun time before our Jam sessions. And P J ALWAYS serves my steak first!!!

In my many thanks, I’m including my Church, Second Baptist in Houston. My Bible Study Class, CrossTraining , took on a project when they saw my family had a need and the entire class pitched in and gave our home a make over,  While the work was being done, we were put up in a hotel.  We how have a new home with wonderful landscaping. Thank you Nancy Adkins and Dotty Tompkins for heading up the project. Everyone in the class took part in making our home comfortable.

I hope you all have gotten as much from the site as I have and will continue to share your stories, your challenges and your victories here on this site. Thank you all for being such good, no, great friends!

Happy Thanksgiving to everyone! Your friend, Reggie

3002441017_c08b6e7a41_b1Some of you may have noticed my new photos that I posted today.  Thanks to my friends Connie and Jaen Lawrence, I have a huge new desk, office supplies, printers, faxes and computers. This is just prefect for all of my office needs.  My computer is really fast, and It is a Mac.  I can print, fax, and mail in high volume now of JUST ASK! products you all will 3002238891_593762a525_b1order in the up coming Holiday season. : > )  Plenty of time to order now. Come on keep me busy. I will post photos of how busy you keep me at my office.

See how much desk space I have.  Also I want to thank Lou & Michelle for the office space at StanandLou.