Remember that time Reggie used his political prowess to encourage a presidential proclamation for National Neurofibromatosis Awareness Month? We do!

#TBT to 1992, featuring future president George W. Bush, Dorothy, and Reggie Bibbs sharing in the preparation for the official proclamation for Texas NF Day. His father, the current president proclaimed November National NF Awareness Month shortly thereafter.

“National Neurofibromatosis Awareness Month, 1992. By the President of the United States of America
A Proclamation: This week we pause to reaffirm our Nation’s commitment to the fight against neurofibromatosis, a common genetic disorder that affects the nervous systems of more than 100,000 Americans.”

Action is the first step to awareness .
Action is the first step to awareness .

 

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It seems that not only was Reggie’s courageous story of founding the Just Ask Foundation featured in the Houston Chronicle, but it has also been picked up by nine publications and counting!

The Washington TimesMiami HeraldSacramento BeeKansas City Star, and the Texarkana Gazette all ran Reggie’s most recent interview with the Houston Chronicle. Even a couple leading German publications such as Bild and NewsDE featured Reggie! And the UK’s Disability Today also spotlighted what Reggie is doing for NF Awareness.

The Just Ask Foundation is extremely grateful that this story enthralled both a culturally and geographically diverse audience and helped to continue our mission of spreading awareness of neurofibromatosis.

If you have seen any other newspapers, magazines, or websites with Reggie’s interview, we’d love to recognize them as well!

The Just Ask World Tour depends upon your support to help spread hope and increase awareness of NF, domestically and internationally. Currently, renovations on the interior of the bus are still underway, so any support is greatly appreciated. As always, Just Ask is accepting gracious donations via Paypal and GoFundMe. Just click the green button to the right.

Thank you for your continued interest and support of the Just Ask Foundation and stay subscribed for more exciting news and updates!

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The Just Ask team had a great day at Second Baptist Church. We met a lot of people in Reggie W. Bibbs bible study group but were very impressed by how friendly everybody was. I felt like we were in the middle of a Reggie Bibbs Fan Club convention. We couldn’t take two steps without someone coming up and saying hi. But we were blown away when Dr. Young recognized Reggie from the pulpit and proceeded to tell the congregation that Reggie was his hero for everything he is doing to raise awareness of NF.

   Just Ask Gang with Kevin

Kevin Nealon, former SNL star and long-time supporter of the Just Ask Foundation, preformed last Saturday, September 20th at Houston’s Improv comedy club. Naturally, the Just Ask crew stopped by for some laughs and photo-ops.

Kevin Shows Some Love

Nealon took the time to reconnect with Reggie before the show and was presented with his very own Just Ask World Tour shirt, which he even wore during his act! This thoughtful gesture even caught the attention of one audience member, who Just Ask-ed about it during the show! Kevin then told them about Just Ask and Reggie.

Afterward, Nealon joined the Just Ask crew to check out the bus. He has been a tireless supporter of the Just Ask Foundation for several years. We can’t wait to catch up with him again when the World Tour hits LA!

Kevin Talks with the Gang

If you are interested in purchasing a Just Ask World Tour shirt, they still are available here. Sizes range from Youth Medium to Men’s and Women’s XXXL.

Thanks to your wonderful generosity and support, the Just Ask World Tour is now able to venture farther and farther from home. However, we’re not done yet! We have taken care of the two most important needs of the bus, mechanical and visual. Now we need to concentrate of the interior and functionality.

Original Bus Interior

This ’91 vehicle sports the original interior. The Just Ask Foundation is not seeking luxury, only functionality. We need seating to accommodate Reggie’s unique needs, such as support for his leg. We also need spacious, lockable storage for t-shirts and other fabulous accessories, a comfortable captain’s chair for the brave bus driver, AC current for laptops and phone charging, exterior locks and privacy curtains.

Any help or suggestions in fixing up the interior of Just Ask Mobile is greatly appreciated. As always, we are accepting donations via Go Fund Me and PayPal. An Austin, TX tour stop is currently in the works, so be on the lookout for the Just Ask Mobile. In the meantime, there will be Just Ask World Tour news and updates regularly posted on social media and our website. Thank you again for your continual support towards promoting awareness of NF.

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“This is NF” was a 60 second TV public service announcement for the Texas Neurofibromatosis Foundation. Reggie remembers the shoot fondly. “I love this. I remember when we were filming. I felt like a star. The crew was really nice. David Norton Who Produced is, Amazing.” Something that hasn’t changed since the shoot is Reggie’s outstanding modesty. As he says in the video, “It’s great. But then of course it is; I’m in it.”

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From BCNF Symposium 2013, Reggie speaks about his strategies for coping with the challenging effects of Neurofibromitosis. Also, The Reggie Bibbs NF Hero Award is presented to Courtney Willoughby who stepped up to spread NF awareness in her community after her diagnosis and triumphs in her battle with NF. Remember, The Just Ask! Foundation runs entirely on the generosity of others, so please consider making a donation to the Just Ask! World Tour to help Reggie continue speaking across the U.S. and Canada.

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Here’s a PSA from 1990 featuring director of Just Ask, Reggie Bibbs. Just Ask! was not even an idea at this time, but Reggie has always been a voice for the NF community ‪#‎tbt‬

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The Bus Stops Here!

Texas NF Symposium 2014 at MD Anderson Cancer Center in Houston

Just Ask founders Reggie Bibbs and Lou Congelio drove the Just Ask Mobile to MD Anderson Cancer Center last Saturday, August 16th, to attend the annual NF Symposium presented by the Texas NF Foundation of Dallas, Texas.

Cindy Hahn, Executive Director of the Texas NF Foundation, and Emily Deutscher, Development & Events Director at the Foundation, did a great job in putting together an incredible event that allowed everyone to reconnect with NF friends and families from years past while also making many new friends!

A “Who’s Who” of NF doctors, surgeons, researchers, and clinicians were on hand to update us on the latest news and treatments. Among the doctors and topics discussed were:

Overview of NF and Genetics – John M. Slopis, M.D., MD Anderson Cancer Center

Benign and MPNST’s Surgical Resection – Ian E. McCutcheon, M.D., MD Anderson Cancer Center

Neuropsychology, Education and NF – M. Kris Frost, M.Ed, and John M. Slopis, M.D., MD Anderson Cancer Center

Clinical Research and New Protocols – Laura J. Klesse, M.D., Dallas Children’s Medical Center

Scolosis/Psuedarthrosis – Charles E. Johnston, M.D., Texas Scottish Rite Hospital, Dallas

Brain Tumor – Wafik Zaky, M.D., MD Anderson Cancer Center

Thank you Cindy, Emily, Dr. Slopis, and the Texas NF Foundation for all you do for the NF community. I don’t want to think what it would be like without you! For more information on the Texas Neurofibromatosis Foundation, visit www.texasnf.org or follow them on Facebook.

sarahaustinandreggie
Reggie Bibbs and Sarah Hines Austin
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Reggie Bibbs and Hannah
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Cindy Hahn and Emily Deutscher of Texas NDF Foundation

Reggie Bibbs and Dr. John Slopis of MD Anderson Cancer Center
Reggie Bibbs and Dr. John Slopis

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