I wish Reggie would stop pasting his head on my body. Fun at the CTF NF Forum! #endnf
Tracy Chapman once wrote, “I’ve seen and met angels wearing the disguise of ordinary people living ordinary lives.”
Ladies and gentlemen, meet the newest Just Ask Angel, Pamela Skaufel!
Pamela is moving to Australia and can’t take everything with her so she wants to donate the really nice things she’s decided not to ship.
More next weekend!
It is with great sadness that I must inform you of the death of Byron Bibbs, Reggie’s brother and mechanic for the Just Ask World Tour bus. Byron suffered from COPD and apparently had an asthma attack at 1:30 am April 15 and died en route to the hospital via ambulance.
Services will be held this Saturday, April 25, 2015, at Merry Olive Baptist Church, 2804 McGowan and Delano, Houston Texas. Viewing at 10am. Service at 11am.
I have spoken with Byron’s family and they ask, in lieu of flowers, that donations be made to Byron’s favorite charity, the Just Ask Foundation.
In the early days of the Just Ask World Tour, Byron, a mechanic, proved to be a Godsend helping us fix the bus and making it road worthy to help us raise awareness of neurofibromatosis.
While Byron wasn’t a rich man, he never asked for anything in return for his services. I think he was very proud of his participation in the Just Ask World Tour and especially very proud of his brother, Reggie.
Because of Byron, the Just Ask World Tour lives on. And now, because of you and the Just Ask World Tour, the beautiful memory and legacy of Byron can live on forever.
Donations may be made online here at the GoFundMe Just Ask page at http://www.gofundme.com/justaskworldtour or by check, to the following address:
Just Ask Foundation
c/o “Byron Bibbs Memorial Fund”
4918 Heatherbloom St.
Houston, TX 77045
The Bibbs Family and I thank You!
The Just Ask Tour traveled over 1,300 miles – from Houston, TX to Scottsdale, AZ – to attend the annual CTF NF Forum! Over mountains, through deserts, eating more fast food than we’ve ever eaten in our life, Reggie and I made it and lived to talk about it.
It’s been non-stop meetings and presentations packed with news on the latest clinical trials for Neurofibromatosis patients, the latest research and the latest facts about this disorder that affects 1 in 3,000 people!
I’ll write more after the conference is over but this is what the CTF website had to say:
April 17-19, 2015: Scottsdale, AZ
The Children’s Tumor Foundation’s NF Forum is a national patient and family gathering hosted annually in different cities across the United States.
The NF Forum allows those living with NF, and their families, to connect, support, and learn from each other while attending seminars on relevant topics pertaining to neurofibromatosis.
The 2015 NF Forum features: NF clinical and research updates, sessions on the personal and social challenges of living with NF, interactive Q & A sessions with NF specialists, fun activities, meals, social time with friends and family, and much more!
The Children’s Tumor Foundation, mindful of the high cost of transportation and family expenses, has underwritten a significant portion of the registration in order to keep the registration costs as low as possible.
Please know that it wasn’t easy getting to this stage of the Just Ask World Tour. It took a lot of time, sweat and money to make this happen.
Reggie and I were happy to take care of the time and sweat and a lot of the money involved with raising awareness of neurofibromatosis.
But now, unfortunately we are falling short on the money part that will take us through the tour.
The $15,000 we have raised so far has helped to get the Just Ask bus in condition to travel the country. We have a motor we kind of trust, the exterior wrap is finished and looks great thanks to some special help from Matt Cline and Bayou Graphics, and a very functional but yet cool looking interior from the Upholstery Shop.
Now, quite honestly, we need to build up the GoFundMe account so that we can actually travel with the bus.
This upcoming trip to attend the CTF Forum in Scottsdale, Arizona has more than tapped us out on our expense account. Fo us to continue and post a schedule, we will need to raise some money, not a lot, but enough to get us to a few more locations.
We really want to be able to make it to Canada and see all of our friends in Vancouver, Calgary, Manitoba and, yes, Red Deer.
Any help you can provide, no matter how small will go a long way for Just Ask to fulfill it’s mission — to make life easier to all with neurofibromatosis by raising awareness, understanding and compassion for those challenged by it.
I can’t think of a better ambassador for NF patients than Reggie Bibbs.
He is doing extraordinary things way beyond even his comfort level to make it easier for the next NF patient to live life a little easier.
If you are unable to donate, and we totally understand, at least share this page with your friends in the event they would like to help.
I think we owe Reggie our unending love and affection but also the funds to help him do what he was born to do.
Please click below. Thanks you!
ALL HAIL JOANIE KING!!!
If it wan’t for Joanie King, the Just Ask Foundation would not have had the strength, stamina, know how or ambition to turn a run down, 1991 GMC school bus into a cool, smooth running, good looking, art car that has been seen by over 300,000 people on a Saturday afternoon in Houston.
If it wasn’t for Joanie’s enthusiasm, kindness, generosity and can-do spirit, I’m afraid of where we would be with the Just Ask Tour. She gave us strength and hope when we had none and her contagious enthusiasm kept us going when we were ready to give up.
It seemed only fitting then on Saturday that Joanie King was leading the way as the Just Ask World Tour Bus made its inaugural voyage in the year’s Houston Art Car Parade.
I just want to say this about Joanie…when other people just promise, Joanie is the person that does. I would rather have one Joanie than a thousand of the others!
She will always have our back and we will always have hers.
We love you Joanie King.
Reggie and I are so blessed to be surrounded by so many caring souls at the Houston Art Car Parade! We were fortunate to meet and greet some of the 300,000 Houstonians who turned out for this year’s event!
Oh, and just look at the vehicle that just happens to be in the background from the Houston Chronicles’s website below!
To those at the parade who asked how they could donate, just click here! It’s the official Just Ask World Tour gofundme account! Thank you for helping Reggie accomplish his mission!
Reggie and I had a blast at the annual Houston Art Car Ball in downtown Houston. Saw a lot of old friends and made a lot of new ones. The Art Car Ball occurs every year the night before the legendary Houston Art Car Parade, the largest in the world!