Santa Bibbs
Santa Bibbs

As 2014 draws to a close, it is not only appropriate but necessary to thank the thousands of friends and supporters that have made the Just Ask Foundation a leader in promoting awareness of neurofibromatosis.

We believe that the more people who know about neurofibromatosis and its many manifestations, the easier it will be for those challenged by NF to enjoy life more fully — no longer encumbered by the prejudices of those who don’t understand.

We intend to continue educating people and reminding them that it doesn’t matter what we look like on the outside, that we are all the same on the inside with the same thoughts, desires, feelings, wants and dreams.

From humble beginnings…

We, at the Just Ask Foundation, are very proud of what we have accomplished to date but, we realize, there is so much more to do.

This past year, we were the recipient of a 1991 GMC school bus that would allow our dreams of a Just Ask World Tour to begin. Many thanks to Tracy Boulware at Deer Lake Lodge & Spa in Montgomery, Texas for their most generous gift and kind thoughts!

Graphic designer, Kim White, of Open Road Creative and our friends at Bayou Graphix helped us incredibly with their expertise, advice and “special” pricing that enabled our bus to become a traveling billboard, helping us reach thousands of people every day just by the mere appearance of the bus at gas stations, restaurants,special events and just driving down the road!

To great things!!

We are very, very proud of the finished result!

in 2014, we started an online fundraising page at GoFundMe which has truly been a blessing. We have already received over $14,000 in donations of our $120,000 goal which has allowed us to make much needed repairs on our Just Ask bus and to visit various cities around Texas!

Hopefully, through continued donations and sponsorships, we’ll be able to travel more extensively throughout the United States and Canada spreading the word about NF.

I would be remiss not to mention the countless individuals behind the scenes that have helped us in so many different ways — spiritually, physically and financially that helped us get to where we are today.

Carolyn Farb, Reggie Bibbs, Greg Gorman

First, and foremost, much of what has happened in Reggie’s life would not have been possible without the kindness, thoughtfulness and generosity of Houston socialite Dr. Carolyn Farb!

Carolyn chaired the first major fundraiser for neurofibromatosis back in 1992 and asked Reggie Bibbs to be featured in the now famous fundraiser, “My Heart Belongs to Daddy” held on the ice rink at Houston’s famed Galleria.

Reggie and the Ladies

 

 

Later, Carolyn introduced Reggie to Los Angeles photographer, Greg Gorman, who to this day remains one of Reggie’s closest friends. Greg gave Reggie the money to buy his first car and on many occasions has flown Reggie out to his home in Hollywood where he invites many of his showbiz friends to meet Reggie and help promote awareness of his disorder.

Reggie and Beyonce. Reggie is the reason Jay-Z had to put a ring on it…

The names of these celebrities would fill a Who’s Who of Celebrities but I will try to name a few: Sharon Stone, Catherine Bach, Shari Belafonte, Quincy Jones, Sugar Ray Leonard, Ricki Lake, Beyonce, Chris Atkins, Rick Moors of The Bonedaddys, and many, many more!

Colin Hay, lead singer and song writer of the music group, “Men at Work”, has been a huge supporter of Reggie and Just Ask the past four years. Besides comp tickets at the door for the Just Ask team, Colin dedicated his hit song, “Waiting for My Real Life to Begin”, at his last performance in Houston. and granted Just Ask exclusive use of the song in perpetuity. Click above to view the song recorded at the Dosey Doe Concert venue in Houston, Texas.

Play ball!!

William Hughes and Matt Jones of the Just Ask Foundation edited their own version of the song using photos from Reggie’s extensive Flickr account. Click here to witness Reggie reaching out to people and raising awareness of NF wherever he goes.

Kevin Nealon

Extra special thanks go to Kevin Nealon, formerly of “Saturday Nite Live” for being an incredible friend to Reggie on and off the stage through VIP tickets, texts, emails, phone calls and linking to Reggie’s website on his own page. Kevin is, by far, one of the nicest people you will ever meet!

Other celebrities and individuals who have gone out of their way to support Reggie and Just Ask include Kenny Rogers, The Neville Brothers, Cirque du Soleil, former Texas Governor, George W Bush, Fort Worth Mayor Mike Moncrief, Dr. Vic Riccardi, Dr. Don Baxter, Dr. John Slopis and Bart Moore of M.D. Anderson Cancer Center, Houston Mayor Bill White, Dallas Cowboy Coach Tom Landry, Houston Roller Derby, Robin Leach, musician Charlie Sexton and many, many, many more!

Reggie and the Psych Ward Sirens form Houston Roller Derby

We are so appreciative of all the help and support we have received to get to where we are today but, quite honestly, we haven’t even begun to accomplish what we feel we must do to make a difference.

Once again, we ask for your generous help and support to allow the Just Ask Foundation to continue our mission to raise awareness of NF so that EVERY human being with NF has a chance to live their life with love, understanding and compassion.

Thank you for all you do!

As Reggie says at the ends of all of his emails, MAKE IT A TREMENDOUS DAY!

Lou talking to Reggie’s hand.

Lou Congelio
Reggie’s Friend
Executive Director, Just Ask Foundation


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Of course, the Just Ask foundation is always accepting donations from our personal community via Go Fund Me, which has already raised over $14,000.Please feel free to connect us via Facebook, Twitter, and thehttp://www.justaskfoundation.org for updates on the Just Ask World Tour!

ABOUT NEUROFIBROMATOSIS (NF):*

Neurofibromatosis, or NF, is a common, yet under- recognized genetic disorder that can cause tumors to grow on nerves throughout the body.

• NF is more prevalent than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined.

• NF occurs in one in every 3,000 people and affects millions worldwide.

• NF can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain.

• NF can arise in any family regardless of race or ethnic origin. Roughly half of all cases arise in families with no history of the disorder.

• NF has three distinct forms, NF1, NF2, and schwannomatosis.

• NF research is shedding new light on several forms of cancer, brain tumors, bone abnormalities and learning disabilities, ultimately benefiting the broader community in addition to those with NF.

• Progress toward ending NF is being made every day. Because of Children’s Tumor Foundation funding, there are over 40 on-going NF-specific clinical trials in existence, and 44 NF Clinics nationwide.

* Above information was provided by the Children’s Tumor Foundation (CTF.org)

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