Well, I almost missed out on a well needed lift in spirit. After not feeling in such a good way, my friend Lou called me ans ask me to go to the Renaissance Festival again this year. Thanks to Lou and all of my friends I met today, gave me something to bring that smile that my friends tell me they like to see. If if were not for my friend talking me, I would have missed meeting all the wonderful people that made me happy. All of you that I met today, I hope to see your comment on my blog, as well as enjoy all the photos, while you are learning about NF. Thanks and see you on the blog.
In this photo you see me goofing around a little. This was a different trip for me. It was special in many ways. My friend Scott Dickson, who lives in Manhattan Beach California invited me for a visit. We went in the mountains. Kings Canyon. I’ve never seen anything as beautiful as the Redwoods, and the mountains. There was snow on the ground and trees. If you haven’t visit Kings Canyon’s, you must make the trip soon. It is well worth the time. We did our best to capture nature’s beauty in the photos, but you just have to be there to really see what it is really like. The drive was long, with beautiful mountains and lots of fields with growing fruits trees.
I want to say thank you to Scott and his family for making it possible. Scott and Lisa Dickson have always made me feel welcome in their home. Also Lou called and gave me lots of encouragement. He reminded me of something that I needed to hear at that time. He said I was strong. I was bothered at the time, but didn’t tell Lou. But it was like he knew. He spoke the words when I needed to hear them. He doesn’t know, but what he told me helped me. Thanks Lou.
Not to forget about Steve Bass, my transportation to and from the airport, which was a big help to me. Enjoyed the conversation. I’m excited about your involvement and for wanting to be more involved with Just Ask. Thanks for wanting to help!
Dear NF friends,
A month ago I announced Phase 2 of the Neuropathy Rx trials. There are still plenty of openings in the trial. If you attempted to contact Patty Hall and got no reply, please email back to me, and I will pass on your information to her. Some emails did not get through.
Here’s my original announcement again –
NF, Inc. Michigan
NF Support Group of West Michigan
Last year we helped recruit patients for an informal study of the nutritional supplement, Neuropathy Rx, for possible benefits in reducing the size of neurofibromas and preventing the development of new tumors. Read about the product at www.neuropathysolutions.com.
Results from the initial study were very promising, so a second, more formal, study for NF1 patients is being undertaken. The research nurse in charge of signing up participants is Patty Hall, RN. She has written to me:
<< Here are the qualifications for the study we’re starting on Oct 1, so if you could get the word out that I’m looking for 60 patients to follow on supplement or placebo, I would appreciate it. Any interested patients can contact me at 616-826-4033 or through email at firstname.lastname@example.org. Continue reading