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NEUROFIBROMATOSIS SOCIETY OF ONTARIO Meeting

4045403638_2142700701_bYou may have noticed my absence recently.  I was a speaker at the Neurofibromatosis Society of Ontario in Canada. Their annual meeting was this past weekend and I was honored that I was invited to speak.  I met new friends, and was able to share with the group about JUST ASK and what we are doing here in the United States, as far as awareness of NF. It was a great meeting. We may have video posted soon, so stay tuned.

PHOTOS

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Brandy Dupre, our newest Just Ask! ambassador.

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William, John AuCoin and I went to the Alabama Ice House last night to listen to the Flaming Hellcats. William had his Just Ask! hat on and I had my Just Ask! tshirt on when all of a sudden, I thought I heard someone say, “Ask you about what?” When I turned around I saw this young woman who seemed quite interested in me, or, more importantly my tshirt.

I told her the story about Reggie and how he had this idea to print tshirts so people would feel comfortable coming up to him and asking about his disorder and the fact that we had an actual 501c3 designation for the Just Ask! Foundation. Continue reading Brandy Dupre, our newest Just Ask! ambassador.

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Colin Hay – “Waiting for my real life to begin” Video

colin Colin Hay, formerly of “Men at Work, performed at the Dosey Doe Coffee Shop at The Woodlands, TX last Saturday night, Oct. 17, 2009, and dedicated Reggie’s favorite song to him. Click here or on the big photo to hear the song. The smaller photo below was taken colinsmilingafter he finished the song and smiled at Reggie.

Email from Colin:

Hey Reggie,

Great to meet you too. I can only guess at the challenges you have to confront on a daily basis. You are a very elegant and dignified gent. It sounds like you have some very cool people around you who both love and support you which is important in anyone’s life. I have just arrived home from my tour, so I’m going to sit on my stoop and have myself a little tea.
Say hi to your mama for me.

Best,

Colin

This is Reggie writing now. Here is a link to the video my friends, Matt and William, put together to the above song. I love it!!!

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Colin Hay of “Men at Work” at Dosey Doe in The Woodlands.

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What can I say? Last night was the time of my life.  We went to see Colin Hay, of “Men at Work,” at the Dosey Doe in the Woodlands. Thanks to my friend, Matt Jones, for talking the time and effort to make this meeting happen. For someone as famous as Colin to take the time to meet and talk to me, was the best thing that ever happened to me. And for him to mention my name before he sang my favorite song, “Waiting for my real life to begin,”was incredible.  What more can anyone ask for.  Colin talked to me for a long peroid of time. And he made me feel like I’ve known him for years.   His new hit “California” is terrific! I know I’m going to support Collin Hay as he is supporting JUST  ASK! by wearing my shirt to help spread awareness for nf. I hope anyone that has nf will support Collin as he is helping support nf. Buy his cd’s!

(From left to right) John Person, William Hughes, Geo Austin, Marla Hill, Clive Hill, Matt Jones, Colin Hay, Colin’s Tour Manager Ace, Reggie Bibbs, Julie Stewart, Tim Drysdale, Karen Daly, Stephen Daly, Lou Congelio.

LYRICS TO WAITING FOR MY REAL LIFE TO BEGIN  – Colin Hay Continue reading Colin Hay of “Men at Work” at Dosey Doe in The Woodlands.

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SUGAR RAY LEONARD IS ON THE BLOG!

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OCT 16, 2009

HEY REGGIE HOW ARE THINGS GOING? I’M IN LONDON HEADING BACK HOME AND I FORGOT TO TELL YOU THAT IT IS MY HONOR TO WEAR MY DEAR FRIEND’S T SHIRT! I LOVE YA MAN BUT YOU NEED TO SEND ME ANOTHER T SHIRT TO SPREAD THE WORD ABOUT YOUR CAUSE CHAMP! ALL THE BEST! SUGAR RAY LEONARD

Guess who is wearing one of my JUST ASK! t-shirts?

You probably already know from the photo you see here. Yes my friend Sugar Ray Leonard. I was so happy when Ray ordered one of my t-shirts. He told me he would be proud to send me a picture of himself wearing my shirt. He kept his word and I have the pictures to prove it. I have known Ray for a long time and he is always supporting my in everything I have done. Imagine someone as famous as him supporting my efforts in NF awareness. He’ll always be the “Champ” in my eyes!