Posted on

An article about my friend, Ed Port, from Youngstown, Ohio!

beyondface_articleBy Denise Dick

A story on the township resident will air on CNN HLN Saturday through Monday.

AUSTINTOWN — Ed Port writes poetry, loves animals and enjoys cooking, but all some people see is his disease.

Neurofibromatosis type 2 causes severe tumors. For Port, 38, the tumors cover the left side of his face, obscuring his facial features and limiting vision in his left eye.

The Vindicator first wrote about Port and his condition in November. He’s since been in touch with plastic surgeons and other doctors and has received donations from a few people. Port has a Web site www.edneedsamiracle.com, but he is working to establish a nonprofit corporation to accept donations.

This weekend an interview with Port will air on CNN HLN, formerly Headline News. CNN conducted the interview last month.

A network representative said the show, “News To Me,” will air at 7:30 and 9:30 p.m. Saturday and Sunday and at 12:30 and 5:30 a.m. Sunday and Monday.

“You shoot it, we show it,” the network’s Web site says of the program. “‘News To Me’ is the world as seen through YOUR cameras.”

Vindicator chief photographer Bob Yosay shot the video of a CNN HLN reporter’s interview with Port.

Port hopes to raise awareness about the disease through the publicity. Continue reading An article about my friend, Ed Port, from Youngstown, Ohio!

Posted on

They call me “Four-Eyes!”

newglasses3228903143_80aed287ae_b

Posted on

Obama Inauguration

Posted on

Dr. Packer Video from Carolyn Farb Endowed Lecture Series at M.D. Andersen Cancer Center

drpacker

The Carolyn Farb Endowed Lecture in Neurofibromatosis.

“Molecularly-driven Clinical Trials for Children and Young Adults with NF1″

Speaker: Roger Packer, M.D.

Executive Director and Chariman, Dept. of Neurology, Childrens’ National Medical Center, Washington, DC

WATCH VIDEO

Posted on

ANOTHER GREAT STEAK NIGHT AT PJ’S & LOU’S!

3192833598_19995c7c5f_bThursday was another great Steak Night at PJ’S Sports Bar followed by a JAM session at Lou’s place.  First, after a long absence from PJ’s, we made our first visit of the year. It was great seeing John, Matt, Geo, Everett, William, PJ and a new friend,  Brieton.

After enjoying our great steaks, we went to Lou’s studio…I mean house, where we played our favorite songs, Ball and Chain, Do Lord, and I’m On Fire. We  may have the video up loaded soon. Also we have pictures of us playing. View the photos and watch for the video. Thank you Everett for some of the photos you took for us. MORE PHOTOS HERE