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PHOTO: (l-r) Reggie Bibbs and the beautiful Carmen Geddit of the Houston Roller Derby.
Speaking of the roller derby, mark your calendar for August 10 as the Houston Roller Derby honors a certain person on this blog who will remain nameless.
Please make plans to attend and wear your Just Ask! t-shirt. Don’t have one, no problem! We hope to be selling them before the match!Advance tickets are just $10 online, $15 at the door!
Come see all of your favorite skaters including Dementia, Mistilla the Killa, Jeckyll & Heidi, Carmen Geddit, Death by Chocolate and more!!!
Wee Lou “Louise’ Cunningham
On Jul 24, 2008, at 8:39 AM, wee_lou_c wrote:
No unfortunately i had the scan yday and it said the tumor has
grown very large now because of this i would be cut off from the
things i call life also there wud have been a much heavier risk of
me dying straight away today. So i have chosen not to have this but
live slightly longer 2 years at the most and enjoy my family
friends and things i enjoy doing. I thot my outcome would be so
much brighter but yet again i have to keep fighting to enjoy wat i
have left. Dont be sad.
Wee, am sad but in a way happy that at least the next two years will
have a quality of life that is better than if you had the
operation. I wish I was as brave as you, Louise, to calmly say I have
two years left at the most. I wonder if there is a way to get your
records shipped to M.D. Andersen Cancer Center so our NF doctors here
could take a look at them. Are you flying back now or driving?
William Hughes, Michelle Reed and Lou Congelio meet new friends at Beavers, Sawyer at Washington in the Heights. SEE ALL THE PHOTOS!
Me and Desi Cration, Shana, Carmen Geddit, Jeckyll & Heidi, Frorocious and Dementia!!!
I was talking with wee lou (Louise Cunningham from Scotland) the other day when she hit me with a bombshell…the operation she is having on Friday, July 25 is a little more involved than she first let on.
In fact, it’s downright dangerous.
She will be getting a tumor removed from her brain stem which will result in some pretty horrific side effects. I’ll let her telll you in her own words. (She gave me permission to share the email she sent me.)
“I haven’t explained everything about this op. The outcome will change me. Yes i will exist but i wont be louise like everyone knows and have grown to like i will be completely dependant i wont be able to walk, talk, eat or do all the things ppl take for granted. Today my mum asked do i still want to go through with this as supposedly i have to think about my self not what every1 wants.
i will be fed by a tube coming out from my stomach, ive had it before its vile but i had it through my nose as this was temporary then. ive known about 3 to 4 months im not sure of my emotions of it.
Yes iv had a few opinions yes but unfortunately they all said the same. I wont be paralysed but such a sitting in a chair i will easily fall as the first op i had when i was 16 took away my balance
which i have learnt to control but this time my balance will go completely. If i dnt go for it loads i will have a couple of years left and unstoppable headache’s. I usually just go with wats my friends and family but a few have realised it will take its toll on me.”
Wee Lou is going through an incredibly tough time right now and she needs our love and support more than ever before. If you could take a moment to post a message to her on this blog or on the live chat or via an email, I know it will be very much appreciated.
Her email is firstname.lastname@example.org
Here is a post from Juliet. I hope we can get a answer for her.
Hello! Great job, keep it up! I have a step-daughter with NF type 1. She also seems to have a few risk factors for Celiac disease (I’m also a nurse). I wanted her tested, but the doctors didn’t order it. Does anyone know if there is an affiliation with NF Type 1 and Celiac? Celiac often goes in conjunction with other inherited disorders such as Diabetes Type 1, autoimmune disorders, autism, seizures in certain parts of the brain, dyslexia, and a few others… I’m trying to raise awareness with doctors and the public. Newer statistics say it may be as high as every one in 80 people. If it is a secondary diagnosis, a gluten free diet often helps control their primary illness. Reggie is an inspiration!