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GO ASTROS! MY FIRST GAME AT MINUTE MAID PARK!!!

Reggie Bibbs First Ever Astros Game!!!WOW!!!!!!!

What can I say but WOW!!!!!

I have always wanted to watch the Astros in person but was always afraid to be in crowds among people I thought would be afraid of me or not want to be around me. I WAS SO WRONG!!! I had the best time of my life!!!! I felt like I was surrounded by friends and I have to tell you, that doesn’t happen very often.

Thank you, all of you who came up to me and said hello and took pictures with me. You have no idea what that simple act of kindness meant to me.

It was the greatest day of my life!

I want to send an extra special thank you to Amanda Ludeke, on-air personality at Sports Radio 610. Thank you for introducing yourself to me. Thank you for making me feel so special.

And thank you Jay Sitta of CBS Outdoor for the incredible tickets!!! You guys rule!

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Reggie Bibbs First Ever Astros Game!!! Photos Now Online!!!

CLICK HERE TO VIEW ALL THE PHOTOS!!!

Welcome to Minute Maid Park!

CLICK HERE TO VIEW ALL THE PHOTOS!!!

Thank you to all the new friends we made today at Minute Maid Park!!! What a Tremendous Day!!! Thank you all who came up and introduced yourself to me! You really made my day!!! Continue reading Reggie Bibbs First Ever Astros Game!!! Photos Now Online!!!

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WELCOME TO MY BLOG AND MY NEW FRIENDS AT WWW.CTF.ORG AND THE NF EUROPEAN MEETING!

Do you think the Heritage Building makes me look fat?Hi Everyone,If you are visiting this blog for the first time, welcome!

The purpose of this blog is to serve as a meeting place for people who have NF, or who knows somebody with NF or is just interested in learning more about NF. But no matter how we are connected to NF or this blog, I know we all share the same goal: to find a cure. Continue reading WELCOME TO MY BLOG AND MY NEW FRIENDS AT WWW.CTF.ORG AND THE NF EUROPEAN MEETING!

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FRIENDS FROM THE FIESTA STORE

My Friends at Fiesta!Here are a few friends from one of the grocery story I love to shop, Fiesta. Everyone here is really nice. I ‘m here with the managers of the store, Curtis and Linda. It’s at South Main and Post Oak.

If you live in the area of this store, please stop and say hello to these nice people. Let they them know they are making a difference in the community they serve.

It’s sometimes very difficult going to new place where people don’t know you or are unfamiliar with neurofibromatosis. Nice people like Curtis and Linda make it very, very easy to live a “normal” life. They give me the courage and confidence to reach out to others about neurofibromatosis.

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SOMETHING TO BE HAPPY ABOUT: ENCOURAGING EMAIL

nfauk-logo.gifReggie,

I just wanted to drop you a line and say how great you are! I have NF1 too and although it’s not too severe other members of my family have it pretty bad. Having the disease isn’t fun and the tumors cause a lot of pain. It doesn’t help that doctors over here in the UK know so little about it, I feel I’m teaching them sometimes! It’s put me off having children so I think I’ll stick to dogs!
I saw your video on You Tube and had a look at your website. It’s very cool and I loved the photos too. You have a gorgeous family and a good group of friends.
If one thing NF has taught me it’s never to judge anyone on the way they look and I get so mad when I see it happen on the tv or in the street. Anyway, congratulations on all that you have achieved and for making people more aware. You are an inspiration!

 

Best wishes,

Kim