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THE 19TH ANNUAL GOODWILL GALA

goodwill.gifLast night was the 19th Annual Goodwill Gala. Mom and I was invited. Goodwill and I go back a long way. It was there I had my first job. NF has changed all of that. Many of the things I was able to do before, I can’t do anymore.

I learned a lot and saw a lot of old friends. I met a lot of new ones too! I hope Goodwill will continue the terrificreggiedorothygoodwill.jpg work they are doing for all of the great people that have jobs because of Goodwill. Maybe some here have worked for goodwill, and would like to share how thay have been helped like so many others employed By Goodwill.

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BIKE RALLY

Making Cancer History Bicycle Team Rides Again

Members of Team Cheniere hit the road again to raise money for neurofibromatosis research at M. D. Anderson. The 2006 Race Across America, an annual cycling competition involving about 40 different teams, left San Diego, Calif, on June 13, 2006 and rode over 3,000 miles nonstop, day and night and arrived in Atlantic City, NJ.

Poto of Kirk Gentle and Chris Shaw

This year’s “Making Cancer History Team” consists of only two riders, Chris Shaw and Kirk Gentle (left). A support team included Leslie Christison, RN, head nurse of the Robin Bush child and adolescent Clinic, and M. D. Anderson photographer Shawn Green. In 2005, Team Cheniere raised over $100,000 to fund neurofibromatosis research programs at M. D Anderson. They hope to raise even more this year to benefit the Children’s Cancer Hospital.

One of our patients, Emily Parker, has been adopted as their “pedal partner,” a living inspiration for riders to keep going. Read Emily’s story at teammakingcancerhistory.org.

Read Team Cheniere’s “road journal” or make a donation on their website.

This Year the event will be this April. Date to be announced.

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DOCTOR’S VISIT

I have been getting lots of wonderful encouraging messages from all you. Thank you. I went for my regular check up at MD ANDERSON in Houston Texas. You never know what will happen with this disorder. Everything seem to be ok, but there are things that I will have check out to make sure. A MRI was ordered and that will be soon. We want to make sure the problem with my back is not something releated to nf. No need to worry now. I’m sure it will be ok. Just thought someone would like to know. Lets keep the blogs alive. Keep checking. New things added often. Give me your ideas of what you want to see. I have a few surprises up my sleeve. You will have to tune in to find out. Thanks

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MY TAKE FIRED OREO COOKIES

oreos.jpegWell, I said I would post how the fired oreo’s. It was my first time to fry oreo cookies. It taste like chicken. <g>

I was surprised. It didn’t look very pretty, but is sure did taste good. It was like fresh baked cookies out of the oven. If you like sweets as much as I do, you will enjoy fired oreo. I used the double stuff. A plate of the oreos mile and the remote control, then you go your self a content dude. Now that you know how I feel about it. Let me hear from you. I wonder how a deep fried sneakers bar would taste ?

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CORTEO CIRQUE DU SOLEIL

Yes, I did enjoy the show last night. Corteo, By Cirque Du Soleil. It was a wonderful show. If you a familiar with Cirque Du Soleil you will enjoy the show. Lots of funny parts and the music good. After you see the show I would be happy to hear what you think. Last night was was like a dress rehearsal. Tonight will be the first nigh. Hope to hear from all of you that will see the show.