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TEXAS TRAIL RIDERS MOSEY INTO MEMORAL PARK IN HOUSTON

Hello Friends, I was one of the lucky Texans, who saw the trail riders come to town. It was a great sight. Everything western. The weather wasn’t the best, but it was good for the trail ride. All of the riders seem to be happy. Did any one else see the riders enter town. Post about it? I would love to hear from you.

On another note, Please let me know If you have not received a reply from me. All of the email has made a difference in mylife. I am learning so much from all of you.

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HOUSTON CHRONICLE ARTICLE!!!

Great news! Kim Hughes of the Houston Chronicle called on Tuesday wanting to interview me for an article in the paper. I said sure, you bet! So she asked me a lot of questions about growing up, the website, the “Just Ask” t-shirt and it was really fun. And she was just wonderful! If Kim is any indication of the type of people who work for the Chronicle, I’m going to be a lifelong subscriber.

But there’s more.

I just finished a photo session for the Houston Chronicle at my house. The photographer, Clayton R. McKee, was real nice and made me feel very comfortable. He took photos of me and my Mom in our “Just Ask!” t-shirts, me playing pool and stuff like that.

I am not sure when the article is coming out but you can be sure that when it does, I’ll post it here! Thank you all again so much for your support. I am truly blessed to have so many wonderful friends!

Write me and let me know how you are enjoying the site.

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TIME TO RODEO

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Well, we are talking rodeo again. Kick off is today, I believe. I’m excited and expecting this will be a good year. I don’t know if I will be able to go, but who knows. The schedule has a great list of country entertainers and other great entertainers for all of you who are not country music fans. I would like to hear from all of the fans who plan to see someone from our home town–Clay Walker. And I know my good friend here would love to here about it. After all, he will get me a picture of ASLEEP AT THE WHEEL. He is such a cool guy. Right Lou?

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Neurofibromatosis, Inc.

NF Inc
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What is NF?

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States (one in every 3,000 to 4,000 births).

NF has two genetically distinct forms: NF-1 and NF-2. The effects of NF are unpredictable and have varying manifestations and degrees of severity. There is no known cure for either form of NF, although the genes for both NF-1 and NF-2 have been identified.

NF is an autosomal dominant genetic condition; it is not contagious. Approximately 50% of those affected with neurofibromatosis have a prior family history of NF. The other 50% of cases are the result of spontaneous genetic mutation. If an individual does not have NF, s/he can not pass it on to his/her children.

Joseph Merrick, whose condition was depicted in the play and film, The Elephant Man, is often incorrectly thought to have had neurofibromatosis. Merrick’s condition has been identified as Proteus Syndrome, a disorder similar to NF, but unrelated. To learn more about Proteus Syndrome, please visit the Proteus Syndrome Foundation’s website.


  Neurofibromatosis, Inc.
P.O.Box 18246
Minneapolis, MN 55418
Phone: (301) 918-4600
1- 800-942-6825
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I AM OVERWHELMED

I am overwhelmed by the outpouring of support that I have received from the Fox News Broadcast. Thanks for your encouragement. My email box is overflowing with all of your kind words and thoughts and I am still answering every one of them. So I may be a little slow updating my blog so please bear with me. I really feel great about people being so open with me and explaining how they feel about the newscast, NF and me. It’s wonderful feeling normal! Thank you all so very, very much!