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A Letter from our Founder, Reggie Bibbs

Dear friends,

Reggie and his brother, Byron.
Reggie and his brother, Byron.

As some of you may know, I am a man of meager means. Part of this is because of my NF, but part of it is also due to the way I’ve chosen to lead my life.

I live simply. I don’t need much and I am not a complainer. I have a firm faith in God, Country and my fellow man. I don’t need a big house, a nice car or perfect health because I have spent a lifetime figuring out what is truly important: living comfortably within my means and enjoying the companionship of others.

But no matter how frugal I may be, sometimes even the simplest needs of the Just Ask! Foundation are beyond my ability to provide.

When people find this out, they often say “If I only knew you needed something, I might have been able to donate it to your cause!”

Like when I needed new shelves for my t-shirts, and my friend Lou Congelio helped me out by donating some really nice shelves he wasn’t using anymore. Sometimes it just works out that a particular company or individual happens to have exactly what I need.

Reggie and his mom.

So, if you happen to be one of those people or companies that is in a position where you are able to make a positive difference in someone else’s circumstances—or mine— I am asking you to please do so.

As you may know, a big part of Just Ask! Happens via the Internet. It has truly opened the world to me. And now we have an online store!

I’ve always felt that life simply “comes at you” whether you are ready or not… and it’s how we react to life’s challenges that I believe is a person’s measure. For all of you reading this that have helped others through volunteering or charitable donations, allow me to say “Thank You” on behalf of everyone that ever needed the help of their fellow human beings.

Now, go out and “Make it a Tremendous Day!”

Reggie Bibbs

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Houston Roller Derby Celebrates NF Awareness Month!

The Just Ask Foundation is honored and very appreciative for being selected as the featured charity for May in honor of Neurofibromatosis Awareness Month! We totally and absolutely adore every hardworking athlete, coach, volunteer and fan at the Houston Roller Derby!!! We love you!!!!

Our founder, Reggie Bibbs
The founder of Just Ask! Foundation, Reggie Bibbs

Houston’s own Reggie W. Bibbs, the founder of the Just Ask! Foundation and HRD Superfan, will be making an appearance at this Saturday’s game!

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Reggie receives a ton of love at the Houston Art Car Parade today!

“It is an amazing feeling to know there are a lot of great people that are around us everyday. The acceptance I felt today is something that I wish every person with NF to receive the same feeling. No, it wasn’t easy, but it was worth it all.  If I stayed home. I never would have met the wonderful people I met today. Thank you for caring.”

Reggie

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A note from Zach Galifianakis

Letter from Zach Galifinakis

I received this nice note from from my friend Zach Galifianakis. Thank you Zach.

Letter from Zach Galifinakis

Reggie –
I wanted to write you a quick note letting you know how honored I was to meet you.
Flannighan told me a bit about you. Your story is quite moving.
Your fight is more than impressive. I hope to say hello to you again down the road.
Best –
Zach G.

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Reggie and Maurice Featured in People Magazine, South Africa!

Our friend,  Simon Vukelj, of the Children’s Tumor Foundation, sent us a link to this weeks People Magazine, South Africa edition! Thanks, Simon! It’s nice to see Reggie’s work and Maurice’s coolness continue to get noticed worldwide!

Living With  Neurofibromatosis

  • Pearl Mphuthi, March 30, 2016

When most of us worry about pimples, zits or even wrinkles. Real people like Reggie Bibbs and Maurice Simpson embrace, accept and manage to live with Neurofibromatosis throughout their lives.

“None of the one’s on my face hurt. They’re just like extra growths, you know, fatty tissue. Above my left eye there’s a lot of itching on the inside, it tingles on the inside above my eye.” This is one of Reggie Bibbs response when he was asked about his struggles with a disease called Neurofibromatosis.

10442432_10152533824331518_7618939240264365475_nNeurofibromatosis (NF) is a genetic condition causing benign tumors to grow along certain types of nerves that affects the development of bones or skin. This brutal condition causes pain and even death and the tumors get bigger over time.

Reggie Bibbs a man from Houston, Texas. His struggle with NF began when he was a toddler, “I was eight months old when we found out about neurofibromatosis. They found a small tumor on my heel and a small tumor on my eye and one in my mouth”.

Growing up, like any other child, Reggie was victim of harassment. In an exclusive interview prepared by Wikinews reporter Michael Laurent, Reggie has pointed out how difficult growing up was and how he looked different from everyone else, “It was really difficult going to school because there were a lot of kids that used to make fun of me, and there were some that were nice,” he says.

NF has spread all over Reggies body including his leg and the left side of his face, “My leg from the knee down are tumors and a lot of fatty tissue and it swells. It’s difficult to walk.” Reggie’s leg is shaped like an S and he wears special socks to help him get around, “I have to wear a special sock to hold it together to keep it from expanding. It’s a compression sock and it’s helped with circulation. If I take the sock off it won’t look like an S. All the fatty tissue would just drop,” he adds.

After numerous failed surgeries, Reggie’s mission is to put himself out there to raise awareness about the causes of NF. There are a lot of patients who fall victim of this dreadful disease but are afraid to seek help because they prefer to hide behind closed doors and deal with this ordeal by themselves.

Maurice Simpson is an outgoing and confident man from Ogden, Utah.  He does not let his condition get in his way. He has had Neurofibromatosis since he was six-weeks-old and the disease has spread and disfigured his face.  The 36-year-old father of five has accepted his state and with the support of his family, he faces each challenge as an opportunity to help those in need.

It’s clear that Reggie Bibbs and Maurice Simpson share a lot in common. Both sufferers of NF and till today they manage to live with it and are on doing more research to help find a cure.

Together they agreed to feature in TLC’s ‘My Brand New Face’ which aired earlier this year. The documentary is aimed to inform and educate the world about Neurofibromatosis. The reality show showcased Reggie travelling to meet Maurice for the first time face-to-face and together they share a lot of common interests.

The pair was happy to have finally met and formed a brotherhood relationship. Maurice works as a Manager at a fast food chain and lives with his supportive wife of eleven years and children. He loves being in front of people. In an article written by Janae Francis, Maurice said, “I don’t want to hide or stay in the house. I want to be out and about making people happy…I’m in that point in my life with all the questions people ask. I just want to do more”. A local businessman showed his generosity when he anonymously sponsored Mr Simpson’s surgery, “My anonymous donor, I call him my guardian angel, I mean, he’s just a great guy. Whenever I think about it, I get kind of choked up because I don’t know why he would do something like that, you know”. The documentary covered a graphic scene where Maurice underwent surgery for thirteen hours and a five hour procedure to remove the tumor from his face. In another article by Carole Mikita, Maurice was pleased with the successful operation, “It looks a lot better, and it’s given me a new-found confidence”.

The ‘Just Ask’ Foundation was launched when Reggie wanted to spread the word about Neurofibromatosis. He knew that coming forward and taking a stand about NF will help people who fight this disease.

Living With Neurofibromatosis